Dystonia is Curable: Hand Dystonia Recovery Progress

Mid-2019 I started to notice some strange sensations and uncontrolled movements in my right Hand during playing the Accordion. For example: when I played a note with one finger, the other fingers moved uncontrolled and reflex-like. It went harder to move from one finger to the other. The fingers moved reflex-like to play the notes “faster/earlier than they should”, etc.

I didn’t know what was happening and thought, the reason was lack of practice (although I practiced a lot). So I practiced more. More repetition. More aggressive practice.
The whole practicing approach was just wrong and made it just worse. It was emotionally exhaustive.

In January 2020 it got worse so that I had dystonic symptoms in the right hand all the time. While resting, walking, moving the hand, typing on the keyboard, etc. Playing an instrument was impossible.

In October 2020 I was diagnosed with Focal Hand Dystonia (luckily pretty fast due to the experience of my neurologist).

Now, one year into doing the exercises, clear improvements can be seen (see this Video).

There is still a lot to work on. All filigree movements, like typing on a keyboard, playing the piano/accordion, etc. still need more work.

0:05 Hand Reflexes Exercises
5:18 Shoulder/Forearm Exercises

[niko]

I am convinced that you will overcome this difficult time with hope and faith. I wish you good health!

[erikabudagova]

Thank you very much for sharing! You are not alone in this journey of recovery!

[aleksandarjovanovic]

Svirački merak je sledeća vežba! Samo napred!!!!

[shlomifnunu]

im so sorry to hear i wish you the best, i suffer from left hand issues as dystonia but this because i took Perphenan when i started took this pills in 2013 my left hand gotten dystonia. i play games with one hand this ruin my enjoy play games and i sad about it years everything started because Perphenan... im with you bro wish you fast health

[gavinlocke]

Great video good to see you have over come it!

[sylvainhonnorat]

Gracias por compartir tu experiencia y ejercicios, llevó años con distonia focal y cada puerta nueva que se abre me ayuda en el difícil camino de la curación. Gracias!!

[macintoshimann]

Woo look at you! I have a decent case of this from a bad accident. Caused my head to to contract to my shoulder and hip on one side. For a while I was totally stiff with nothing but nerve pain to feel but after 6 months I got some movement back. Then one day my neck moved my head back on top of my body and my nervous system booted back up! Keep it up! For anybody struggling with this I personally would t have been able to recover without using cannabis to calm the nerves down enough to get some control!

[davidnorden]

I've just found out that I have dystonia in my right index finger. I'm so glad to find out that there is indeed treatment for it.

[adarshraj]

Hii..it's so nice that you are recovering hat's of to your patience and consistency Just keep it bro..Hope one day you will be able to type with 100percent efficiency..I want to ask you my fingers do not shake.. neither do i have spasm of cramp but i can't type for mor than 5 minutes with my left hand.. it's kind of muscle fatigue amd soreness feeling. Can you tell me this is similar to focal hand dystonia?

[alexmwangi]

Hey.I would like to ask if there was any medication you took

[adrianburridge]

Do you think there ought to be
some vocal accompaniment!!!

[m.s.]

Hello! I have been recovering from focal dystonia for about half a year (I play the bass guitar). At first, the progress was quite fast, but then it slowed down. Although I've already made a lot of progress, I still can't fully play. So my question is: Is it possible that progress in dystonia recovery stops at some point?

[juliabeder]

Hi. I’m so sorry you’re suffering from this horrible condition. I, too, was diagnosed with a hand dystonia last year. I cannot write, and typing on a keyboard and even on my phone is hard. Did/do you have any problems with writing and/or typing? If so, were you able to find a solution for that? Wishing you all the best in your recovery process 🍀

[rohonmukherjee]

Hello.. Firstly great to see you recover in this manner. I am also under the same condition since last 6 years. I am not seeing any hope but your video gave me some confidence.. Please kindly tell me how much you have recovered and is recovery possible at all?? I have been suffering since 2015 from right hand dystonia. All I am worried about is its spread.. Could you please help me out brother??With any suggestion?? I feel helpless nowadays!!

[songsofnightingale]

I have same problem... Uncomfortable feeling in palm near thumb in right hand and can't write with pen .... Thanks for your positive vedio 🙏 please help me how can I feel better with excercise 🙏 I don't want to take medicine of brain 🙏so please please please please help me 🙏 if any other gain with this positive results please share your experience and motivate others also 🙏 I am from India .Pease help me 🙏🙏

[manzoorkhan]

Dear plz help me for treatment of writing cramp

[heatherallingham]

Mine is mostly facial - wonder if there is a program for that

[neon]

Hi brother i wanted to ask that whether we can move our hands normally or not after the dystonia attack. I am actually trying to understand that whether i have dystonia or not, i thought i have dystonia but this is something that i can avoid if i stay atone place and i can even feel it before the attack.
Are the dystonia attacks of very short duration?
Don't get me wrong i am just trying to understand what disease do i have

[junaidakhter]

Do u had any difficulty with handwriting

[junaidakhter]

From which dystonia ur suffering writers cramp or musician dystonia