Post-Finasteride Syndrome: The Devastating Human Cost Of A Hair Loss Drug

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Finasteride is a drug marketed to young men for male pattern baldness. For #RareDiseaseDay 2021, Post-Finasteride Syndrome patients speak out about their experiences taking finasteride and devastating and lasting impact it has had on their health and lives.

Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual health problems that persist and progress after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to treat hair loss. There is currently no effective treatment.

PFS Network is the largest patient-led organisation. Our objectives are to raise awareness regarding this devastating condition and support molecular-level diagnostic research in PFS patients. This will enable effective screening for those predisposed to this debilitating condition, and therapies for the many already suffering.

These serious and stigmatising adverse effects are poorly recognised. Young people cannot give an informed consent without knowing what they are risking.

Every person is valuable, and everyone deserves to make a fully informed choice with their health.

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Proud to be one of the men sharing their story. Thanks to all the other men speaking out. As long as we stay silent and anonymous, we will continue to be ignored.

mitchsabine
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Thank you so much for having the strength to speak out about this terrible issue. These people need help immediately. Research needs to be done on this condition. It is very real

animatedstats
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Thanks all of you for speaking.
On same condition after 3 years

jeysmith
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Thank you all for helping to raise awareness for this devastating condition

leoturner
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Respect to all of you guys for speaking out against this horrible condition

Karim-ji
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Thanks for having the courage to speak out guys, I'm also a victim. 26 years old and have been living a nightmare since 4 years... my girlfriend recently broke up with me because the sex life was missing... I don't understand how people can ruin other peoples lives for just some money...

poostenbrug
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Thank you for bringing awareness to PFS

TheRealAIhundo
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I'm so proud of all you guys for telling your stories. This condition is awful and the more we talk about it, the more we'll come closer to letting people know it exists. I really felt it was me in each of these videos. THANK YOU.

migonbrah
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Much respect to everyone speaking out for this cause. Severely misunderstood and poorly recognized, PFS is a devastating condition. Young men have zero idea of what risks they are consenting to when they take Finasteride.

damonkize
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Much respect to all of you. You are not alone. Finasteride has given me horrible sexual side effects. I do not wish this upon anyone. Take good care of yourselves.

anonymousse
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Thanks for speaking out guys. You are heroes. This condition is life altering and devastating.

ippjourney
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I’m so sorry this happened to you all. You’re all awesome for doing this.

maxbrown
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You are all incredibly brave for coming forward. Thank you

MT-nuvl
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Thank you for all your incredible effort guys!

CryptozillaKH
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Thanks for spreading awareness about this awful condition.

AC-nsgu
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I can't thank you guys enough for sharing your experiences with the world and putting a face to what is so often a hidden disease.

trickymorton
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Thats so frightening. All the best to all of you guys!

hannesbolman
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PFS is a nightmare condition. There needs to be more awareness. Period.

tbreez
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Ongoing chronic adulthood trauma from using this drug - both on a cellular level and psychological level. Traumatizing in every aspect of your life. Terrible suffering. I'd like to share my story soon. Very traumatizing if your poor economically, and have no support or hate & abuse, from family like what I experienced. Lucky to be alive today.

wolfkingsigma
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I can completely agree 100% with all these guys... I’ve been going through the same thing for over a year now. Its crazy how i have to “pretend” I’m okay to everyone. No one knows what’s behind my smile every day.

anjeuri