Worried about fibroid cancer (Leiomyosarcoma)? Here's what you need to know.

Cancer's a hard topic for everyone. If you or someone you know is facing fibroid cancer, also known as leiomyosarcoma, here's what you need to know about your symptoms, treatment options, and the oncology process.

Many fibroid treatment options are available to help you combat fibroid cancer, and you're not alone in this process! In this video, Dr. Marc Winters and I unpack fibroids, fibroids cancer, and when your body is sending you red flags that it's time to get tested by your doctor.

#fibroidcancer #leiomyosarcoma #doctorrich #cancertreatment #fibroids #fibroidcancersymptoms #fibroidtreatment

If you have a question for me about anything we talked about in this video, leave a message for me in the comments below.

QUESTION: How has cancer affected you and your family? Remember: We're here to support each other even in the hard times.

** The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional **

[vdbehrens]

I have had both open abdominal and laparoscopic surgery. I understand very well the appeal of minimally invasive procedures. But as a survivor of a different kind of leiomyosarcoma (retroperitoneal) who participates in support groups, I have known far too many women with uterine sarcomas who died after morcellation (even when a bag was used and the morcellation was manual). My 17 cm tumor was removed intact through a large abdominal incision 8 years ago, and I have had no metastases or recurrences. If I had fibroids that needed to be removed, I would insist on an open procedure. Healing takes longer—but healing slowly is better than dying.

[laurapenny]

I am an 18-year survivor of uterine leiomyosarcoma because I was NOT morcellated. My surgeon removed my fibroid thru an open-abdomen hysterectomy. This video promotes the "fibroid" so that it sends the cells throughout the abdominal cavity. I know people who have died because of this. Read the story about Dr. Amy Reed and "Kicking the Hornet's Nest." She left behind her six young children and her husband, Dr. Hooman Noorchashm. There is NO way to know in advance if your fibroid is really benign.

[margeb]

It happened to me! This doctor doesn't care about you. He reminds me of my gyne who ran from me as soon as he found out I had leiomyosarcoma. I was scheduled for a laperscopic hysterectomy because of fibroids, this technique is also called marcellation. The doctor here isn't telling you everything... This type of surgery chews up everything and sucks it out through a tube. Bags or no bags spills happen and your tumor is chopped up spreading cancer cells. 2 weeks before my scheduled laperscopic hysterectomy I had an emergency abdominal surgery. Because of that emergency surgery I am still here today. If I had the marcellation/laperscopic surgery as plan I would be dead by now do to the speed of cancer cells. Educate yourselves you beautiful women before letting a doctor like this one shorten your life because it's an easier and quicker way to remove a fibroid. Your life means more then that.

[cinderellakb]

It happened to me. I was diagnosed with leiomyosarcoma after a large fibroid was found that required a hysterectomy. My doctor did it robotically, although by the mercy of God, he did NOT use a morcellator. He had to remove the large part of my uterus vaginally. Because of that 5e cancer was completely removed and I remain cancer free 8 years later. Using the techniques this doctor is discussing has led to the deaths of many women.

[samanthafreeman]

It happened to me, I had Leiomyosarcoma. My gynaecologist convinced me cancer was rare and I had nothing to worry about. I agreed to morcellation in Jan 2020 and a week later was informed that I had Leiomyosarcoma. The cancer returned in April 2022, 2 new rumours were detected in my pelvis, following surgery it was again confirmed Leiomyosarcoma. I will spend the rest of my life worrying about new tumours and the spread of cancer in my body. This Dr talks about Fibroid cancer, but that’s misleading…it may start as a fibroid for some people but this type of cancer can spread to any smooth muscle tissue and re-occur even after the fibroid has been removed. Morcellation increases the risk of it spreading.

[sharonanderson]

This video is pro morcellation. 1 in 350 going in for fibroids has uterine leiomyosarcoma. ALL fibroids should first be biopsied, but that is not always effective. They should be recommending open abdominal surgery for all fibroids. Once morcellation has happened, you spread the cancer in the abdominal cavity, causing stage 4, uncurable stage of cancer. Even bag containment leaks cancer cells. I am a 20 year old uterine leiomyosarcoma survivor who was NOT morcellated. If you had morcellation, I would not be here to warn others of the danger.

[jeniferjaffe]

Lost a best friend who had a very rare kind, sweet heart because she had this morcellation procedure. I can imagine what she would be saying from the grave in response to this video.

[momog]

It happened to me - I was diagnosed post surgery in 2019 and I am so grateful it was NOT morcellated, and I have not to date had a reoccurrence. You should not be recommending morcellation - the risks are too high. Needs to be full open surgery to remove the uterus intact.

[denisejanowiak]

It happened to me. I had a morcellated fibroid that was uterine leiomyosarcoma. I’ve been upstaged and am not curable secondary to the morcellation. Morcellation spreads it every where. Do you want to take that chance with your wife, mother, daughter?

[welcometosusansmukbang]

👉I would do nothing & pray 🙏 I went to see two doctors and they are giving me two different conclusion. Sometimes, doctors can misdiagnose you and give you anxiety too. Only God can help you 💯❤️

[tlavender]

I just found this diagnosis on some of my medical records from when I had my hysterectomy. The crazy thing is I was never informed of the diagnosis. I am sitting here in shock because for the life of me I cannot figure out why this information was kept from me.

[arayaasbeautifulreborn]

Hi..sadly I am that person that has the cancer. They took it out of me last year 2021 of May. It was really really big!! I had a hysterectomy. I ended up having 22 units of blood put back in me. They almost lost me. A whole year went by and now its back. Attached to my small intestines. About three weeks ago, the size of it was 7in by 4in round. In my abdominal area the long way. They said they can't do anything for me. Cry..cry. why? So now I just wait for it to grow bigger and die. Oh God help me!!!!

[anglophils]

This is a very informative video regarding the risks of, and treatment of, leiomeiosarcoma. Many of us middle-aged ladies have fibroids, so we do wonder. Thank you, Doctors, for posting this. It was particularly interesting to hear about the bagging of the fibroid before removal, to prevent spread of possible cancerous cells within the uterus.

[mariakorfioti]

It happened to me. I had Leiomyosarcoma. All fibroids should be treated as suspicious. Total abdominal hysterectomy is the safest option for removal.

[cathyvalentine]

It happened to me !
I had non invasive Robotic assist Laparoscopic hysterectomy where my tumor was cut up and put in a bag . I have Leiomyosarcoma and now it has spread
All Hysterectomies with fibroids or suspicious should be done Abdominal

[mimiya]

If one had a myomectomy and uterine ablation for abnormal bleeding, and the pathology report came back as “highly suspicious for leiomyosarcoma”, what would the next step be?

[Saramariahelena]

I have a fibroid that has gone from 1, 5 cm in diameter to 2, 5 cm in diameter from october 2023 to may 2024. I stopped menstruating in fall of 2022 but then had a bleeding for 2 weeks in fall of 2023 and 2 more bleedings after that about 6 months later. I had menopaus symptoms during fall 2022.
Is it normal that the fibroid grows like that once you entered the process of menopaus and had almost a year of no bleeding?
I just had a morcellation done😳
The results say the endometrium shows hormonal signs.
Confused..

[KreiviT]

Can a fibroid that has started degenerating have similar characteristics of leiomyosarcoma by looking at MRI? My Dr said that he highly doubts that it's cancerous. He recommended a laparoscopic myomectomy but I worry about worst case scenario. I was looking into UFE originally, but would that shrink a fibroid that is cancerous.? Also, why can't biopsies be done on fibroids by sticking needles or suction device into the questionable fibroid to take sample for testing?

[BiancaRoberts]

Wow. Maybe I shouldn’t have started reading the comments. I have had an MRI and they’re concerned about cancer since my lymph nodes are being affected.

I just discovered I have fibroids after my stomach getting larger and larger over the last year and a half. My largest one is 20.3cm and now I’m super scared.

I’ve just been referred to a gynecology oncologist. So I’m waiting on what’s next. I was wondering why they just can’t tell me based on the MRI if it’s cancer or not. But I understand that’s not possible.

Thank you for making this video even though I’m more scared than ever from reading these comments. 😢 I know everything will work out.

[SL-upqh]

What are the symptoms of a cancerous fibroid?