September Is Pain Awareness Month - Ehlers Danlos Syndrome - #shorts

✨#SeptemberIsPainAwarenessMonth🎗𝐃𝐫𝐨𝐩 𝐚🩵 𝐢𝐧 𝐭𝐡𝐞 𝐜𝐨𝐦𝐦𝐞𝐧𝐭𝐬 𝐢𝐟 𝐲𝐨𝐮 𝐜𝐚𝐧 𝐫𝐞𝐥𝐚𝐭𝐞.🦓 Ehlers-Danlos Syndrome can be painful all the time. Joints can hurt from instability, have micro tears, minor subluxations, mild demyelination, muscles working twice as hard to compensate for unstable joints, and more! Most EDS patients live with pain that is between 5-10 on the pain scale daily.

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[susanegley]

Please tell your patients about U.S. Pain Foundation! They have so many amazing free support groups for people with chronic pain! The groups are through zoom. The leaders are people with chronic pain as well. ❤

[DanieleH-tv]

I wish that more doctors were informed about how much pain we live in day in and day out. This is a miserable way to live and be treated.

[marcydrake]

So grateful for this message because when I say that pain is all day everyday the doctor looks at me like I’m crazy or exaggerating. When pain becomes a fact of life, you find ways to keep going even though it hurts because you must in order to survive. It doesn’t mean there isn’t pain, it just means I’m able to persevere in that moment.