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Shwachman-Diamond Syndrome and Rare Disease Day
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Shwachman-Diamond Syndrome Alliance
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Shwachman-Diamond Syndrome and Rare Disease Day
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Shwachman-Diamond syndrome (Year of the Zebra)
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What is SDS and SDSF?
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Rare Disease Day
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What is SDS?
0:22:19
Living with SDS
0:56:46
Eszter Hars, PhD - Rare Diseases and Shwachman-Diamond Syndrome: Challenges, Opportunities, and Hope
1:04:10
Eszter Hars, PhD - Rare Diseases and Shwachman-Diamond Syndrome: Challenges, Opportunities, and Hope
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Shwachman-Diamond Syndrome
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SDS and Me - A book about SDS for kids
1:08:29
SDSF Live: Blood Complications in SDS: Diagnosis, Management, and Treatment - with Dr. Shimamura
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4-Year-Old Walks On Her Own Despite Battle With Shwachman-Diamond syndrome
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What do zebras have to do with rare diseases? Ask Lisa!
0:02:06
Meet Max
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Joyce, Shwachman-Diamond syndrome | 60 Seconds of RARE
1:11:13
SDSF Live - Dr. Shimamura, Dr. Myers, and Maggie Malsch introduce the SDS Registry with updates!
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2 kids with rare disease highlights need for bone marrow transplants
0:06:08
Happy Mother's Day to SDS Moms - 2020
1:10:11
SDSF - Camp Live! - Hematology / Transplant 101, with Dr. Akiko Shimamura and Dr. Kas Myers
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What’s it like to grow up with a rare disease like Shwachman-Diamond Syndrome (SDS)? 💭
0:20:20
SDSF Live - Downtime!
1:17:20
SDSF Live! COVID-19 coping strategies with with Nancy Cincotta
0:36:46
SDSF Live - Transplant Families Aftershow
1:18:10
SDSF Camp Live - Zebrafish Research Update with Dr. Seth Corey
welcome to shbcf.ru
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