Henrietta Lacks, the Tuskegee Experiment, and Ethical Data Collection: Crash Course Statistics #12

Today we’re going to talk about ethical data collection. From the Tuskegee syphilis experiments and Henrietta Lacks’ HeLa cells to the horrifying experiments performed at Nazi concentration camps, many strides have been made from Institutional Review Boards (or IRBs) to the Nuremberg Code to guarantee voluntariness, informed consent, and beneficence in modern statistical gathering. But as we’ll discuss, with the complexities of research in the digital age many new ethical questions arise.

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[UnashamedlyHentai]

Just throwing this out there - the Japanese also conducted human experiments that were every bit as horrific as the Nazis during WWII. It was kept quiet for a long time, so probably didn't contribute to the Nuremberg code at all, but yeah. Unit 731.

[dorothy]

I read the biography of Henrietta Lacks and was surprised that I hadn't known about her before. I still don't understand why this hasn't been given the attention it deserves before.

[ryat]

I disagree with your choice of the word "fail" for describing how the doctors "treated" the Tuskeegee victims. It implies that the doctors didn't know what they were doing. A better word would have been "refused."

[Sarah-vipx]

I absolutely love this episode! I'm writing about ethics in information technology, and that last minute of the video was so on point!

[AnnieCushing]

I've taken a handful of statistics courses. This playlist is, hands down, the best.

[lerownigalerowanisto]

the best serie on youtube. everything is perfect on it

[zhaniahall]

**literally reading “the immortal life of Henrietta Lacks”.. that’s a coincidence

[kharyrobertson]

This is such an important topic, thanks guys.

[vasishtvemuri]

By far this has been the most easiest video to coast through conceptually, but at the same time also posed the most relevant and difficult questions. Indeed, we are the lawmakers for the digital fortress under construction!

[d.harrison]

Because animals cannot consent, we should not be testing on them. I'm glad she mentioned this-- too many discussions of ethics only talk about humans. Animals can suffer, too, and have a right to their own lives, just like you and I do.

[torin]

The SCP foundation doesn't follow the rules very often when testing on/with D-class personnel.

[DrRonontheInternet]

A very informative, sobering look at ethics, not just in research and technology, but also in social media and business. In addition to key requirements such as voluntariness and beneficence, privacy and informed consent, we whose googol of data are collected every single moment ought to have the opportunity (and the choice) to share in whatever profit is gained from our very data! I wonder how much Facebook, Google, and Amazon will be inclined to exploit our data, if profit sharing with their users were to become an international requirement.

[DrStephanieYPough]

Great material for a Medical ethics course!

[AxcelleratorT]

Everybody reading this needs to read The Immortal Life of Henrietta Lacks by Rebecca Skloot

[amandawilson]

LI'l Sebastian flying on a drone LOL-- I'm dead LOL!! All fun aside, this video was excellent. The crash course episodes have helped me so much in my ethics class!!

[Danilego]

WHAT I watched the Crash Course Anatomy about this experiment YESTERDAY. First time watching both episodes and also first time I heard about the experiment. Coincidences, man!

[DrConrad]

Maybe Cambridge Analytica could learn a thing or 2 from this video

[hamzali]

That is weird. I stumble upon this video after i watched another video about hela cells. Kinda beneficial i must say

[kevinconrad]

Noticed the opening that scrolls just a bit to fast, always have to pause to read the dam labels had Yuma as the sunniest place in the world. Glad to report that it is sunny today after two dreadful days of clouds.

[ecrivonlunyx]

There's also the experiments companies paid prisons to do on prisoners in the us, does anybody remember the name of that?