The Luckiest Kids Ever! (0.0025% chance)

this is the Unluckiest, AND Luckiest Kid in the World!

In April 2022, the Shaw family was in the doctor's office, when their hearts broke. Both children were diagnosed with MLD, so they were unlikely to live past their 8th birthday. Luckily there is a the treatment for the disease, called Libmeldy. But it's the world's most expensive drug.

And only 1 daughter could receive the treatment.

The treatment works by extracting stem cells from the patient. Doctor then insert functional versions of a faulty gene into the stem cells. And finally doctors inject the cells back into the body. But this only works if you catch the disease early. And for the older sister Nala, it was too late. But for Teddi, there was still hope. The only problem,

it's still the world's most expensive drug.

In the US this would have cost $3.5 million dollars. But luckily, where they live, there is public healthcare. So Teddi, became the first child in the UK to receive the treatment. And today Teddi, is disease free. Meaning

Sources:

[alementary]

And as always, sources in the description :)

[shulalulu]

I feel so bad for the other one. I hope she still alive. 😔

[johannapomaquiza]

My little sister was born with a disease where you can't live past 2 years and unfortunately there was no cure, on her 2nd birthday everyone was crying but she surprised us and now she's 3 I'm so glad nothing happened to her

[vibremaster]

It's so sad that one had to die bc of a horrible disease. Her memory will live on on in her sister

[ThatsMe.]

This is a sad story but teddy is a boss and obviously made it through. RIP Nala.
Edit: bro I did not know saying a little girl surviving something so tough was so controversial

[mimiandcheese]

I think a lot of y’all in the comments missed the part where he said it was to late for the older child. The parents never ended up having to choose, the treatment was only possible for the younger child.

[adjoviagbotro]

They are lucky they are not in the United States.

[Noob_ontop]

As British I love hearing positive things about UK and rip to older sibling

[neveturney]

I feel so bad for the older sister so heartbroken and depressed she is truly a wee angel 👼 ❤😢

[Tulip]

Imagine having two daughters with a devastating genetic condition - but only one can be saved.
I don't wanna talk negative...so but like tbh, iam really glad that teddy was treated. She is like the luckiest and the strongest girl I've ever seen!❤️💪🏻


(Alwas look on the bright side)

[Jakecbrls]

Imagine trying to help people and then make it so expensive that people can't even pay for it😊

[TheKiwiNPC]

Yep. Free Healthcare is a fucking angel

[elizza_rwe]

this is why I live in the UK. Free healthcare means more lives can be saved.

[amiru]

Guys there’s no favoritism it was too late for the other child

[isabelcarballo]

That's horrible, I feel so bad for them. I'm really thankful that one daughter made it out alive. Rest in peace Nala, we miss you 🙏

[WackChen]

"but luckily where they live, there's public healthcare"

[jjlillie]

At the end of the video APRIL FOOLS
But seriously I feel bad for the other one

[hiimakememes]

as a guy named teddy, i see this as an absolute win

[s..d.a.]

"Teddy is now disease free, meaning-"
**video replays**
This is the _unluckiest_ -

[SmizzyProductions]

The second child looked like somebody placed the face features in the wrong place 💀