Lupus and COVID-19: What You Need to Know Webcast 2

Since the arrival of the coronavirus, lupus and the most prescribed drug used to treat it – hydroxychloroquine – have been thrust into the spotlight despite the mounting scientific evidence that the drug does not seem to improve clinical outcomes in patients with COVID-19. Talked about less is the impact and burden of COVID-19 on people with lupus.

What parallels exist in the overreactive immune response seen in lupus and COVID-19?
Are people with lupus more or less at risk for COVID-19?
Are medications used by people with lupus more or less effective in COVID-19?

Diving deep on research on behalf of the lupus community during this crisis, the Lupus Research Alliance (LRA) and Lupus Therapeutics (an affiliate of the LRA) discuss with a panel of experts actions taken to better understand these and other questions.

Moderator:
Teo Staeva, PhD, LRA Chief Scientific Officer

Panelists:
Gary Koretzky, MD, PhD, Professor of Medicine, Weill Cornell Medicine, and Chair, LRA Scientific Advisory Board

Roberto Caricchio, MD, Professor of Medicine, Chief of Rheumatology, Lupus Program Director at Temple University and LRA-funded investigator

Milena Gianfrancesco, PhD, MPH, Assistant Professor of Medicine, UCSF

Amr H. Sawalha, MD, Chief of the Division of Pediatric Rheumatology, University of Pittsburgh and LRA-funded investigator

Albert Roy, Executive Director, Lupus Therapeutics


Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise awareness and funds for lupus research.

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[digitaluser]

We need a slimmed down version of this, straight to the points

[wendydunham]

Thank you so much. You are all appreciated beyond measure. Such good information. I will ask my primary to watch this information.

[Warrior-In-the-Garden]

Thank you for this valuable info! Looking forward to further updates.

[draconicfeline]

Thank you for this incredible and informative video. I look forward to your next webinar - hopefully I can join in.

[ckendall]

I have had SLE for 20 years. I also have Sjögren’s and CKD. The only anti inflammatory medication that I was able to take was Limbrel and the FDA removed it. I have basically been in a flare since Limbrel was removed from the market and this puts me at a high risk of contracting COVID-19. There are more patients that did well on Limbrel with no side effects than there were those that had side effects. From what I understand, those that had side effects recovered after discontinued use of the medication. Why isn’t Limbrel back on the market?
My quality of life has diminished greatly since the discontinuation of Limbrel. I am now at risk at getting COVID-19 because I can’t get the medication I need to keep me out of having flares. I am so upset! How do patients get in touch with the FDA and get them to listen to what we need?

[zeldakleb]

Is the Covid vaccine safe to lupus patients

[shabnamshahida]

tHE RESEARCH HAS BEEN GOING ON for years, Drug for cure is found?

[annmarievalenti]

If you have no immune system is it worth getting the COVID VACCINE