I’m blind and only disabled when I leave my house…

#disability #wheelchair #blind

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[humanwithaplaylist]

Accessibility helps everyone, not just us disabled people

[jennamissjoy]

I feel disabled when I leave my house too which makes me feel very vulnerable if I leave my house by myself, but I feel safer when leaving the house with my family or friends.

[kaishawna]

This is definitely me. Society needs to do better.

[lynnenicholson]

So true. At home I know where everything is.

Only I’d add other people’s attitudes remind me I’m disabled when I’m out.

I lost most of my sight so subtly I thought I just needed new specs and that bifocals weren’t for me so planned to go back to separate reading and distance specs. I was diagnosed as medically blind September 2016 a few weeks before my 55th birthday. I found ways to live my life “normally” while I waited for the official professional help available here in the UK to finally arrive, using my phone and tablet as magnification to see things, using my walking stick to stop me falling if I tripped and to check if shadows were the holes my brain thought they were. I took my pet dog for a familiar walk, got muddled, couldn’t work out where in the blur I was so told Tippy “ let’s go home, which way?”. Cheeky opportunist took me to another entrance to the park we’d just left… which let me know where we were so I could find my way home.

Now I have my white cane I explore the local countryside using an all terrain tip and am only reminded it’s unusual when I hear people trying to work out where they are wondering where my “minder” is as a blind person couldn’t give them directions *sigh*

I only wish I could see the confusion on their faces when I tell them how to get back on track *laugh*

My favourite app for travel was Soundscape so I’m really disappointed Microsoft have decided to discontinue it as it helped me get confident with bus travel and exploring new areas. What could be better than putting a beacon on my new home while I explored different routes to find the best/ safest places to cross roads, and learned the names of the surrounding roads.

Thank you for sharing your experience

My remaining sight has continued to deteriorate

[barrytaylorprofoundlydeafi]

I am on the deafblind spectrum, I am legally profoundly deaf & have usher's syndrome type 3 which affects my sight & hearing! At home everything is normal & when I go out at night & in poor light I have to use a long blind cane! Trying to cross a road is so hard! I am ok in good light! I wear powerful BTE hearing aids but I can just manage to hear a few words & sounds! I get treated so differently! For want of a better word non disabled people think I am backward/simple! If I am out with someone the shopkeeper asks my friend what I want! I have to say your very pretty! I love your lipstick & clothes I am a fan of 50's style ladies clothes! You look amazing every video! 💖💖💖💖

[nocturne]

Earlier this year I broke a bone in my foot while I was working at my job, and had to wear an air cast for a month.
During this time I went to a concert at a small dive bar in NYC, thinking there were either wheelchair ramps or elevators at every subway stop, making it easier for me to walk. NOPE!!! I had to walk up and down stairs, including at the venue, despite having called before hand and explaining that I couldn't climb stairs due to my injury.
By the time I returned home both of my knees were swollen, and my knee on the leg opposite of my injury had locked! I almost had to call a friend to help me walk the staircase up to my apartment it was so bad!

This experience showed me how disabled people struggle with getting around. I was really surprised, and disappointed, by the lack of accessibility for people with disabilities, especially in a place like NYC which prides itself for being inclusive of everyone!

Placea really should be more accommodating to people with disabilities.

[meganmyers]

I agree I most often feel disabled when I am out of my home environment. The constant advocacy can sometimes be very draining on energy and another struggle I have is that in some situations, the tools to make things accessible are there, but they are not implemented or there’s some barrier to implementing them such as cost. One example I can think of is a vending machine purely because I use the sound of them as a landmark on my college campus to Orient myself. I am unable to use a vending machine without sided assistance. The entire interface is a glass touchscreen with no labels whatsoever the only time it ever gives you a vocal prompt is when it says to please make your selection, my question is if the programming already exists to have it speak, why is there not an option to scroll through the screen like you would on an iPhone to select your option from a vending machine? it would greatly increase the blind communities independence in particular to be able to have vending machines and more standardized screen readers things like ATMs it’s sometimes saddens me to see that these tools already exist, but they’re not being used. A good portion of the issue probably comes from lack of awareness and training about disabilities. but I also think legislation should be put into place to make these modifications standard, therefore forcing the awareness and education that is necessary to make these things work

[heatherem]

My daughter is blind and I have had to fight (after asking nicely 100 times of course) just for basic & reasonable accommodations, even at her home school It will never not amaze me how ableist people are. Most of the time she advocates for herself, like “please dont talk to me like Im a baby or call sweetheart when your calling all the other teens by their actual names and talking to them in a normal tone” … people get so offended, defensive, shut down or and Ive even seen women crying & saying “I was just trying to be nice” Its not the disability that makes her life hard, its the people
One even said they understand her struggle because they wear glasses. Glasses. Its just so disrespectful

[samnikolinagrekov]

I feel the same. I have cortical blindness where my brain deletes what I see, around the house I know where things are and I have control over my situation. And the lighting. When I'm outside the house, the lighting is different and layout is different and my brain sees nothing.

[eakolynn]

The outside world was not taken disabled people into account so much so that a lot of able-bodied people don't feel the disabled people should even come out of their homes I've actually heard somebody use that as their excuse as to why they were upset about handicap parking

[michelinelalonde]

YES - my disability is only invisible when I’m at HOME.

[orcasav]

I feel similar as an autistic person. I don’t feel disabled when I’m just around my family, because we’re all autistic and communicate similarly in a way that makes sense to us. But when I go outside and interact with other people, that’s when things get complicated 😅 it’s difficult to accommodate myself in public spaces without getting weird looks, judgement, or being reprimanded. There really needs to be more disability awareness. People just prefer not to acknowledge or think about certain things because they think “this could never happen to me”.

[achromatic]

When I went onsite to work, I would have these mini breakdowns every 2 months, but after the pandemic started and I was working remotely, I noticed that those stopped

[robertwilson]

Your are also universally inspirational. My humble gratitude for your YouTube presentations.

[Jtttttttttttttttttttt]

Thank you! I know people that are Deaf Blind, with graduate degrees! They learned to adapt to a world made for sighted/ hearing people! Your story is very interesting- thank you.

[juliaostlund]

Coming to terms with how severe my adhd is I'm working on articulating my space that works with MY brain without compromise; it's been a little expensive.

[McStruggles]

My whole family wears glasses. I didn't need them until I was a teenager so I'm not used to wearing them for a whole day. I think they look fine, I kinda even think my frames are cute. But I still don't wear my glasses around the house or at places I'm very familiar with that don't constantly change. Its just more comfortable that way. I don't have to worry about smudging my lens, breaking the frames, getting stuck/pulling my hair.

This video made me notice that I have lots of large text and bright colors around my bedroom.

[mauricioflores]

So true, wish all countries could adapt disability measures. 😢

[asourpoyphony]

Your page is so interesting and informative. Keep it up :)

[ps-lover]

Exactly I feel the same when I go outside