01/23/2024 - Hi-Risk/Recurrent/Advanced PCa Men & Caregiver

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

Editor's Pick: Two genetic counseling students sit in on a lively night of discussion. (bn)

Topics Discussed

After prostatectomy, fear that cancer may still be hidden in the seams; salvage ADT is puzzlingly 36 months and not 24; PSA high, MRI and PSMA light up -- but 13-core biopsy shows nothing; how painful is a bone biopsy?; prostatectomy proposed for shrunken urinary tract after radiation therapy; joint and muscle pain busting out all over -- blame ADT?; concerns about "sticky" blood in his his third and final Provenge round; prostate cancer in the peritoneal cavity; policy changes in hotel support for visiting cancer patients; you have ammunition to fight a PSMA denial -- use it!; good feedback on Dr. Elisabeth Heath; a hello to our group from two genetic counseling students; use your allies (including your doc) in reducing cost of second-line antiandrogens.


Chat Log

Jim Marshall, Alexandria, VA · 6:37 PM
If one decides to stop ADT + Abi, be sure to quiz us as to how too get yourself off of Prednisone. Jim Marshall

Len Sierra · 6:48 PM
why is there no Gleason score after 13 core biopsy??

Unknown · 6:50 PM
I had the Promise genetic test; had none of the gene mutations.

Sophia · 6:53 PM
Promise sounds interesting, I've never heard of it before. I'll have to ask our instructor tomorrow if she's heard of it before!

Unknown · 6:57 PM
When I had the Promise test last year, these were the gene mutations they tested for: APC, ATM, BAP1, BARD1, BMPR1A, BRCA1, BRCA2, BRIP1, CDH1, CDK4, CDKN2A (p14ARF), CDKN2A (p16INK4a), CHEK2, EPCAM, GREM1, MITF, MLH1, MSH2, MSH6, MUTYH, PALB2, PMS2, POLD1, POLE, PTEN, RAD51C, RAD51D, SMAD4, STK11, & TP53.

AnCan - rick · 6:58 PM

"Thomas" Matica WA · 7:20 PM
What was that injectable for trigger finger???

Unknown · 7:20 PM
steroid, ie prednisolone or others

AnCan - rick · 7:20 PM
Prednisolone

Unknown · 7:32 PM
I was having a snack. You might have seen me sharpening a knife.

AnCan - rick · 7:32 PM
We did - impressed!

Peter · 7:43 PM
Good night gents! Got to run!

Len Sierra · 7:44 PM

AnCan - rick · 7:56 PM

AnCan - rick · 7:56 PM

Paul Freda Lake Worth Florida · 8:00 PM