Is this a Recurrence? Breast Cancer Survivorship

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I'm Kathleen Moss, a board certified nutritionist and breast cancer survivor, sharing my cancer story in real time here. In this video I'm taking you with me into the thoughts and actions that have accompanied my first big recurrence scare, post mastectomy, which is yet to be understood and resolved. This is what uncertainty looks like for me. I'm sure it's different for everyone. I've had lots of little bumps and one lump before, and with each one I get less and less freaked out... because they all turn out to be harmless. But this is my first lymph node issue.

Just another breast cancer survivor and advocate, here--don't take my words as medical advice please!

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If you're watching this in December of 2024 and you've had LOBULAR cancer, please fill out this survey from the LBCA about your own surveillance plan!

NOTE: This description may contain affiliate links to products I enjoy using and have tested for quality. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!

#seekingdeeperhealth #nwnutritionist #mastectomy #breastcancer #doublemastectomy #lobular #goldilocksmastectomy
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I certainly hope you get the best possible news. I'm four months post-SMX for ILC and the hypervigilant fear of recurrence grips me every few days as I feel odd sensations in the remaining breast. Your videos are so helpful to me, especially information on lobular cancer. All I was told by my doctor was ILC is the second most common type, which sounded reassuring, but as I learned more about the percentages, stats and future prognosis I realized this will be a part of the rest of my life. I'm faithfully taking Anastrazole so far but don't love the idea that while it's helping prevent recurrence it's also doing bad things to my body otherwise. On the bright side, I've upped my weight bearing exercise and improved my diet in huge ways. Thanks so much for this channel and also your podcast!

lisam
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God bless you! You're amazing, strong, beautiful and so appreciated. Thank you for sharing your story. So helpful from your perspective. Best to you and your family on this journey.❤🌷🫂🙏

debradziekiewicz
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Thank you for sharing as always.
Praying that your results are all positive!

TracySpratt-sy
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Thank you for all you do! I was diagnosed with DSCI a few weeks ago, and I'm so thankful you have shared your journey. I have chosen to go flat. I've been large bested all my life and had planned a reduction in Feb. Never thought my reduction would come to this, but I'm ok with it. Watching your journey made my decision so much easier.
Please continue to keep us posted on your health and know you are doing such an amazing thing by sharing with other like myself. 🙏 ❤

chelebass
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Hoping all the news is good for you, Kathleen. It is such a difficult time when testing is ongoing.❤

cynthialoftus
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I wish you the best, Kathleen.
I've been following you since I was diagnosed with DCIS last February. After a lumpectomy, they found 3 small spots of IDC and ILC, all triple negative. I also found out to have the BRCA 2 gene mutation. I chose to go flat and then I had 4 cycles of taxotere and cytoxan. In October I ended up getting a bilateral removal of ovaries and fallopian tubes.
Just a few days ago marked the one year after the dreaded call to get more images and I just noticed a pimple like growth on my chest, so I have to call my doctors to see what it is.
I'll keep you in my thoughts and prayers for good news after your biopsy.
Thanks for your videos.

karinagildea
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Better safe than sorry. Wish you the best. Lots of love 💖

highvibration
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Sending a big hug your way. Prayers all is ok. ❤️

sunshinesummer
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I worry about recurrence all the time. I had stage one oncotype zero and all negative nodes. I had bilateral mastectomy 8/2023. I had complications on right post op hematoma, infected drains, right incision dehisched and had to pack for 8 weeks. I now have chronic pain on right at incision/chest/rib area and I always worry about recurrence. Onc said very low chance but said she could could order bone scane for reassurance. I am trying to decide what to do. My brain tells me its' just chornic issue but I still worry.

JJB-qd
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Sending you love and good vibes 🙏🏼♥️♥️♥️

maip
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That is interesting about mets cancer statement you found out in San Antonio. I had not thought about that before.

JJB-qd
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I agree with you. Biopsy was horrible! I had two and I never gona have one anymore no matter what.

Pearl
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Pray you receive good news🙏🏾
Merry Christmas & a happy Healthy New Year 2025🎄

elizabethchase
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Praying and hoping for the best and no recurrence. That is quite scary that even though some of us had Tiny ILC (4mm in my case, negative nodes and lymphovascular fluids) mets cld be seeded already?? So what is the answer to that? I read it is the cancer stem cells that are seeded. The AI’s do not get rid of the stem cells? I get pimples off and on too. I think due to my detoxing off and on from diff supplements I take. I wish I cld find a med oncologist I trusted and that was caring. I cld not tol letrazole and I am just not sold on taking such harsh meds, my onc is upset with me. I have known women that take them for yrs and then come off them only to have recurrence anyway and suffered so much while on them with decreased quality of life. I am 64. My trust of traditional medicine is at an all time low. Has to be a better way than blocking all estrogens, menopause has been quite a challenge. I am thin very active, and thin women do worse it seems. I am a health nut too, still got BC. Nursed 3 kids… Thank you for all you do. God bless you.

Itwillbeso