Amplifying Your Voice in FTD Research: Why Am I Asked So Many Questions?

This webinar explains why certain information is gathered and how that data is used by researchers. It is part of the Perspectives in FTD Research Webinar Series that is co-hosted by The Association for Frontotemporal Degeneration and the FTD Disorders Registry.

When studying frontotemporal degeneration (FTD), researchers ask a lot of questions. Research participants may find themselves thinking, “Why do you need to know all this information?” Some people are hesitant to participate in research, and privacy is often a concern.

This webinar will include information about how identity is protected in research. It will show how information gathered through the EL-PFDD meeting and the FTD Insights Survey are used to advance science­­. Additionally, you will be given resources for finding research studies.

During this hour, you can expect to:
- Understand how participating in research leads to advancements in understanding and treating FTD.
- Recognize how privacy and personal information are protected in research.
- Identify resources on ways to participate in FTD research