Rallying Citizen Scientists to Fight Fatal Disease

When the Hempel twins were diagnosed with a fatal genetic disease, their parents embarked on a quest to save them, demanding that researchers partner with them to find a cure: "We don't need the science community to tell us what we should be doing."

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[cochiefemeralds]

Sadly, on 7/5/19, they passed away from flu complications. :(

[coralrain]

Won't be a cure in their lifetime sadly