The Victory Summit: Managing Motor Symptoms During OFF Times in Parkinson's

This panel discusses how to manage motor symptoms when your medication has worn OFF. Coming from the perspectives of a person with Parkinson's, an occupational therapist, and a movement disorder specialist, these panelists have unique expertise and advice to share on this topic.

0:00 - Introduction
1:42 - When to start medication
5:07 - 7 Categories of Medications for Motor Symptoms
6:38 - Carbidopa/Levodopa
12:24 - Dopamine Agonists
16:15 - MAO-B Inhibitors
20:52 - Fluctuations in effectiveness of medications (ON/OFF times)
22:48 - COMT Inhibitors
25:35 - Adenosine Receptor Antagonists
27:11 - Amantadine
28:55 - Anticholinergics
32:25 - Taking medications effectively with constipation
35:08 - Halving levodopa doses
36:35 - Is there an interaction between endorphins and dopamine

VISIT the event page for the Victory Summit Event: Motor Symptoms for the transcript of this webinar, additional sessions, and more:

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[splashesin]

Swimming helps a lot for me. Really just treading and moving around, basically dancing in the water.

[nonahammon]

This video is great, as usual from The Davis Phinney Foundation. I do need to say that I'M a little bit DISAPPOINTED THAT DR. YAGHI DID NOT MENTION ATYPICAL PARKINSONISM MUCH, since it is one of his areas of expertise. But to be fair to him, almost all the medical talks I've researched tend to ignore those of us with MSA, LBD, etc. (sigh) Where can we find the specific info and brilliant new ideas for us? We must make do with the scraps that we can glean from "regular Parkinson" info and try to adapt it to our sometimes very different scenarios. There is a lot here that I can use in that way, so thank you. I'm grateful for it. DPF, please broaden your scope to specifically include us, the "red-haired step-children" of Parkinson research. I don't mean to be critical, just advocating for myself as Davis and Connie recommend.This video is great, as usual from The Davis Phinney Foundation. I do need to say that I'M a little bit DISAPPOINTED THAT DR. YAGHI DID NOT MENTION ATYPICAL PARKINSONISM MUCH, since it is one of his areas of expertise. But to be fair to him, almost all the medical talks I've researched tend to ignore those of us with MSA, LBD, etc. (sigh) Where can we find the specific info and brilliant new ideas for us? We must make do with the scraps that we can glean from "regular Parkinson" info and try to adapt it to our sometimes very different scenarios. There is a lot here that I can use in that way, so thank you. I'm grateful for it. DPF, please broaden your scope to specifically include us, the "red-haired step-children" of Parkinson research. I don't mean to be critical, just
advocating for myself as Davis and Connie recommend.

[GoProGoalieUzi]

On time only last for 1:30-2.5hrs..then you take pills, then it takes an additional 1-3hrs to go “on” it sucks bad! I was 40 when diagnosed, started with 2 sinimet, now 44yrs old. 15 sinimet now, coupled with 6 entacopone every three hrs. Can’t change it..stress, anxiety makes it ten times worse!!! You cannot minimize off time..because at that point, your down, no energy, no motivation, anxiety..