Prof Jon Stone - Functional Neurological Disorder & MS - looking for a treatable cause of disability

Professor Jon Stone - Functional Neurological Disorder (FND) and MS - looking for a treatable cause of disability

[traysjourneysouthflorida]

After a year and traveling to Mayo Clinic I was switched from dementia to FND. Beyond that, the US needs to step up in education of FND beyond, it’s all in your head. Mayo had an intense 3 week program 5 days a week (8hours each day). There was no way I could do something beyond a few hours and that would be a day by day determination. Thanks Dr. Stone. Please please help the US! ❤

[andrewm]

And then theirs me! Diagnosed with FND and yet over ten years later diagnosed with PSP! Thank you!

[mtaylor]

Got a diagnosis of FND today and I am so glad I found your video.

[loveconquersall]

I was diagnosed with this today by a neurologist. I am so scared. I used to be able to go for a run every day, now I can barely walk. I also have MDDS too. There's no treatment clinics or physios for it here where I live - and just that thought alone is distressing. I SO hope and pray that eventually we'll have some knowledgeable professionals here that will be able to help those of us with this crippling & depressing disorder.

[coramerry]

Thank you Dr.Stone for your research. I have FND diagnosed 2 years ago.

[carajones]

I was diagnosed with FND on Wednesday, this video has been so helpful. Thank you

[Bhappi]

He explains this so well, I was diagnosed with FND 2 weeks ago and given a referral for an MRI which will take I’m told ‘months’ the Doctor said don’t worry try not to get too stressed, and that was it, no treatment plan no idea what this entails and now my symptoms are changing, I’ve developed weakness as well as my tremor, a terrible tiredness and a buzzing inside my muscles, I’ve booked another appointment because this is so debilitating not to mention scary

[naomi]

Why are physicians still referring to chronic fatigue as a psychiatric disorder when we know there are biochemical markers of it? Particularly ion channel disfunction. It’s an irritating assumption.

[dermlover]

Anybody here have FND with sensory symptoms? Like numbness, tingling, prickly sensations, heat sensitivity?

[Foxy-elpk]

My neuro psych has just diagnosed me with FND. I'm in Australia

[Lillymae-gqoe]

This is very helpful, I’ve been diagnosed with fibromyalgia and I have spinal cord injury, thats more than 20yrs old. I often wondered if some of my fibro symptoms were FND related. I get sudden headaches that trigger bad shaking of my body, I loose control of body function of my legs to the point of falling down, and sometimes bladder. MS and epilepsy have been ruled out. And talking at times I trip over my words, my fibro fog gets extremely bad. My whole body gets shuts down. Full total system overload. And stress is a huge trigger for the tremors I experience. I’d like to make comments on the Australian FND Hope, but they’ve disabled their comments. Can a GP diagnose FND, or does a Neurologist need to. Our hospitals are back logged with a 18mth to 2yr wait to see a specialist. You’ve provided a plethora of crucial information on this vlog. Thank you.

[andrewkennan]

I have Panic Disorder with disabling symptoms and just recently also diagnosed with FND, so what I would like to know, who actually gives you treatment for these 2 disorders

[naomi]

Stone says that FND is probably misdiagnosed as MS more often the other way around but didn’t give any evidence/stats to indicate that. Are there stats somewhere to indicate this?

[meshezza]

My daughter has FND but she doesn’t have symptoms constantly like most people I’ve seen. Her symptoms come and go. She can be paralysed from the waist down for an hour then get up and walk (although her legs will feel fuzzy) and then another day. She can be deaf for a couple of minutes then be okay. She can have 30 seizures then have none the next day. She can have gait problems for a couple of days then be fine. She sometimes has outrageous tics like she has Tourette’s. She can have severe joint pain then be fine and lots of other symptoms. Does anybody else have FND symptoms so inconsistently?

[sebastiancampos]

Hello, guys!
One of my closest friends was recently diagnosed with FND. Half of his body is paralyzed, he's receiving treatment and has made some progress since then, so I'm not too worried about him. But the interesting thing about his case is that he had several dreams prior to the onset of his symptoms in which half of his body was a statue. Has anyone here ever gone through a similar experience?

[gh-wtip]

I have both ms and fnd its awful, i was also told fnd 98% as my first diagnosis, then they done brain mri and lumber puncture and found out I have demylination lesions and postive o bands
I have RRMS with a fnd overlay

[samhall]

Regarding functional gait disorders, do you ever see impairments in running but preserved walking? Or does this more point to another neurological condition?

[stoms]

I’ve been diagnosed with this last night and today my diaphragm isn’t working feeling shortness of breath. Fatigued feel like I can’t feel my feet.

[lynnwalker]

Iv had FND 11 years not every FND can be completely eliminated
The symptoms have many many changing symptoms

[mohammedyounes]

To everybody diagnosed with FND here, was the symptoms sudden or increased over months?
I’m not diagnosed yet with FND but some doctors started mentioning the notion of it just because they couldn’t diagnose me with anything specific other than fibromyalgia which didn’t explain the significant symptoms, like they are using it as an exclusion diagnosis.