Autoimmune Encephalitis ~Recognizing signs at onset, Diagnosis and Treatment

Originally published by IAES on Feb 22, 2017
Autoimmune Encephalitis (antibody-mediated AE) is a group of diseases. this video provides a brief introduction of what may occur, the evaluations that are needed to arrive at a diagnosis and overview of the treatment protocol. Sharing and tweeting this video may save a life.

The International Autoimmune Encephalitis Society, (IAES), is the only Family/Patient-centered organization for people with a diagnosis of Autoimmune Encephalitis. The services we provide are all-inclusive from getting a diagnosis to recovery and the many challenges experienced in that journey.

Fair use provides an exemption for education and for registered non-profits. The purpose and character of the use, including whether such use is of a commercial nature or is for nonprofit educational purposes. International Autoimmune encephalitis is a registered 501 C 3 non-profit whose goal it is to educate people regarding Autoimmune encephalitis. 17 U.S. Code § 107

[muhfux]

I've dealt with this three times in my life. And beginning to think something is happening again. Life is a crazy experience, just have to take things as they go. Still thankful to God for every breath of life

[LittleMiss]

I never realized how many of us went through this for the past year I felt so alone

[WeathermanElls]

Levi 💙 I was also diagnosed with this horrendous desease. Not many people will be able to understand. Just know that you are not alone! Take care of yourself as much as you possibly can 🙏🏻💙

[brettsmith]

I was diagnose with autoimmune encephalitis 10 yrs ago, started out having seizures, dementia, paranoia, thought I was going crazy . I was in the hospital for 2 weeks and almost died because the doctors couldn't figure out what was going on with me . I'll never forget it for as long as I live . Horrible and I would never wish this on any one

I lost my sister to this disease 2 years ago, February 2021 to be exact. We received a late diagnosis, she was undergoing treatment, but she couldn't resist.
I wish there was more awareness of this disease where I live.

[ight]

This is me. Therapists dont take me seriously they dont know what this has done to me.

[QuodlicetJovinonlicetbovi]

Omg, its so awful disease..Wishing health and recovery for all the people who suffrering this❤❤❤

[azulcelestepatty]

My best friends wife is going thru this is painful to see her, she was such an amazing young woman … I pray she receives the help
She needs and recovers

[thelightworker]

I spent two weeks in a psychosis ward. After been bitten by a stray dog in the countryside. A few months later my brain felt like it was on fire. I think I couldn’t fight it but by the grace of God I’m still here.

[paulrhyslloyd]

I had suspected autoimmune encephalitis fourteen years ago, it destroyed my memory, cognitive abilities, balance, coordination and greatly affected my diabetes. I was misdiagnosed for months while my doctors likened it to someone who had suffered a severe brain injury like someone involved in a car accident. I’m a lot better now but still have a lot of problems with my memory. It is a truly horrible disease.

[sophieyoung]

I'm currently under investigation for this I've been having seizures for nearly 5years and have also suffered with my mental health in various ways( hallucination, hallucinogenic visions and many other things)

[kasie]

My sisters mental health started to plummet after disturbed sleep for weeks, Monday we knew she needed help, she was admitted to the psychiatric ward for observation and by Friday she was in isolation, she kept trying to hurt herself, and 24 hour watch, she was almost catatonic she crashed so fast, she had had no prior mental health issues and they tried so many meds and she just didn’t respond she was there almost 3 weeks nothing was working, so the next step was electro shock therapy it was about 745pm the the shock therapy was booked for 8am the following day and a doctor called her husband telling her the results had come back this evening and she had anti NMDA receptor encephalitis, we had no idea what that meant, and she was now to be moved to the brain ward but because of the psychosis she had to have a 24hour carer, it took months for her to recover and was at a rehabilitation facility for a long time, she recovered completely but does get overwhelmed a lot now which we manage, they never found a teratoma, 🤷🏼‍♀️

[greatnews]

I looked and couldn’t find this type of info on your website, even looked for videos. Thank you for this. I wonder if there’s a neuroimmunologist close to me, near Seattle

[shapeshift]

Idk if i have this but i have cns inflammation and its destroying my vision hearing and ability to sleep. I got dry eyes and dry skin the only test that showed anything was a spi al tap

[robinmaly]

What doctors where treat this?? Who can treat this? It's been 3 years now, and my 17 is in Austin State Mental Hospital because we can't get this treated effectively!! Somebody help!

[pficuzl]

how can i get my daughters story on yiur page

[Santelssi]

Had alcohol delirium same time. It was like a hangover of century

[aethylwulfeiii]

Do you all remember the psychosis and hallucinations?

[bdingbu]

My sister has been suffering from this for 13 years and we are only focusing on psychiatric percepective

[little_miss_vintage]

i just found out i have very high levels of GAD65 antibodies of greater than 250. is this a common indicator of this condition? i also have pernicious anemia and psychiatric symptoms (suicidal ideation, rage, depression, dissociation, anxiety, and depersonalization) and neurological symptoms (unsteady gait, dizziness, tinging on parts of my face, migraines and dx of epilepsy although i do not have full blown seizures). i'm not sure where to go from here