Living With Essential Tremor

Essential tremor is the most common cause of tremor affecting 7-10 million people in the United States. Although it can start at any age, it is most common in people between the ages of 40 and 50.

We will meet with a movement disorder specialist who discusses the unmet needs in the treatment of ET and the currently ongoing development of precision medicines developed with ET in mind.

Plus, we’ll hear from Jean, who has been living with essential tremor for over 30 years, and how she is determined to live outside of the shadows and advocate for others.


#TheBalancingAct #balancingact

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[lyndaedwards]

My mother said i was about 5 years old when she noticed my tremors. Im now 65 and had these tremors all my life. It is so delibetating, its taken over my life. Its affected my self confidence and my health and my way of living. Its been a struggle for me every day

[steve]

I have had essential tremor since 16, I am now 41. It has caused me extreme social anxiety. And the anxiety amplifies my tremors, and then the humiliation and embarrassment of my tremors amplifies my anxiety. Anxiety medications and beta blockers don't help me. The only thing that helps is alcohol. I use alcohol sparingly, when I can't avoid a situation. Other than that, I am like a hermet. I would love to get DBS or focused ultrasound.

[marcydobbs]

At 75 my tremor continues to increase. I have had ET since early childhood. It involves both hands, sometimes legs, and internal tremors as well. A beta blocker helps, but no longer gives me full control. Other drugs are a no. I refuse to quit doing things that I love so adaptive devices are my friend.

[janewestpoldskrvseth]

A got it after a have Stroke. A SHAKE IN, HEAD, ARMS, LEGS A HAVE GOT IT SINCE 2004 AND THANKS FOR THIS VIDEO. 👏🏽👏🏽

[pwk]

There is essential tremor and essential tremor. I have it, but it is mild. My cursive has deteriorated to the point that I print nearly everything. And I struggle getting food from plate to mouth with a fork. Other than that, I don't have a problem. Others are crippled by ET.

[tammywade]

CBD keeps mine under control! I have a yes and no head tremor. And CBD takes it away. I just vape a small amount daily.

[tinabren]

My speech is slow cause my tongue shakes . My hands and head shake. I have severe stenosis in my neck which makes it worse

[nightowl]

What about ultrasound guided by MRI aimed at the putamen.

[elizeleroux]

mine lower legs insidez my vertebrae in neck narrowing

[denison]

Affecting, not "impacting."

[Flyingangelskevin]

Medication doesn’t work iv tried every one and your body gets used to them and the effects were off

[carolf]

I've had essential tremor since I was a teenager... am now 66. It is worsening but I can still feed myself and other ADLs. It's a struggle. I have it in my hands and head. I also have stenosis in my neck which I think is a source of exacerbation.