I finally bought a WHEELCHAIR. Buying a Mobility Aid for ME/CFS. CareCo I-GO Airrex experience.

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After Months of considering buying my own wheelchair, i finally did it! I bought the I-GO Airrex from CareCo. This video shows the decision making process as well as when it arrived in the post and my first time using it. I have a lot of anxiety around mobility aids and using them in public, which is why it took me so long to by one in the first place, but I'm so glad that i have finally bought a wheelchair, as I really think that it will make my life easier and more enjoyable as i have to worry less about waling distances and how long i will have to stand up!!

Do you use any mobility aids or walking aids for you chronic conditions?? (let me know in the comments)

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Everyone with ME/CFS is different! So you or someone you know might have a very different experience with ME/CFS than I do at the moment! Also, remember that chronic conditions such as these can change dramatically over time, so my life may look very different to this in the future (and has be A LOT worse in the past).

Thank you so much for watching!! Make sure to like, comment, and subscribe to see more videos from me every other SUNDAY!



About Me:

My name is Elinor, I am a 22-year-old sociology student who has been living with ME/CFS for 6 years. I also have anxiety and depression as co-morbid conditions! I started making YouTube Videos consistently about my experience with chronic illness and mental health struggles in June 2020 and I am aiming to hit 1,000 subscribers this year! I also love fashion, connecting with people in the community and being creative!!



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#Babewithamobilityaid

#Chronicfatiguesyndrome

#Myalgicencephalomeylitis

#MECFS
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Do you have a wheelchair or another mobility aid??

ElinorBrown
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I've just started going out in my wheelchair! I was terrified the first time, I hid my face and sobbed
Today was my 5th outing and now I can't imagine being without it 💗

pleasebekind
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I just purchased a similar chair from care co and I’ve avoided using it for the first time today. This has encouraged me to go for a ride later tonight! It’s so lovely to see another young person and their journey with cfs/me, sending you all the health!!

ginawetherall
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You reminded me that I'm brave for going out on my own in my electric wheelchair all the time! It did get easier for me. It's a shame that we feel anxious about going out in our wheelchairs because of abelism and stigma but it's worth it and I would be very proud of myself if I was you.

Lottie_La
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I just stumbled across this video, and I wanted to let you know that you’re not alone ❤
I myself am 23 and have a fair few conditions myself, but I also have me/cfs. And I have yet to get a wheelchair simply because I cannot afford it at the moment. But I definitely wanted to let you know that you’re strong, and other peoples opinions do not matter, it is about your comfort and happiness. What other people think does not matter. Your aids are YOURS, not theirs. And no one but you can say whether or not you need them.
Stay strong and stay proud xx
If you ever need to talk to someone, I would love to chat 😊

sezzadore
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I love this! I went through a very similar situation. For me it’s been hard because we still haven’t pin pointed what’s wrong with me so it’s feels less validating and that’s a hard struggle. I bought my wheelchair because I was going to Disney and felt more comfortable having my own especially for after the trip. I ended up buying a lightweight one so I could load and unload it in my car. I was super excited and relieved when I finally got mine in the mail. I didn’t realize how much I needed one until I started using it. I Can actually do things now that I would’ve otherwise had to pass up on because the pain and fatigue wouldn’t allow me to enjoy myself or I would end up bedridden for a day or two because I would’ve tried to push my body and regret it later. Society has led us to believe that “disabilities” and wheelchairs are only for people that “look” disabled. That really makes it hard for people that don’t look that way. I hope you’re enjoying your chair and are more comfortable using it 😊

shebamoos
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I just got a folding electric wheelchair and it is amazing! I can go to the park with my friends kids even go on little hikes. I virtually never left the house and now I can go on little excursions which really opens up my world and does wonders for my mental health.

elizabetter
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Once you realize how much easier your life gets with the wheelchair, your worries and anxieties will fade away. It will help you be a better YOU, and that's what's important 💗

I also have ME/CFS+POTS and other conditions, and I'm getting my custom wheelchair (Panthera S3) + electric wheels in a couple of months. It's a very expensive combo but thankfully our healthcare system provides it for me for free. I can't wait to finally be more active!

Valkoinenhai
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Well done you!!! Lots more places will now be within range 🦽🦽🦽😃😃😃💜💜💜

kaybrown
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I’m definitely on the journey of buying my own wheelchair! It’s been super hard to mentally deal with the fact I need one. I am not able to stand/walk for longer then 5 minutes without horrible pains. Hopeful to find one soon :>

rindrr
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I got fed up with having to rely on others to go annywhere or do annything so I just ordered my first power wheelchair! I have motor polyneuropathy and can´t walk more than 50-75 meters before my muscels act up and totally loose power and controll, and my arms are likewise, hence powerchair and not a manual... When it comes to how one feel using a chair is hard to say for sure, I for one never have felt "awkward" having a disability, but I´ve had my for so long I can´t remember not being a bit different... Hope you all out there who needs a bit of extra to be and get around have the strength to feel comfortable with what you are, and the strength to not punch every stupid person asking stupid questions before they think! 💪💪💪

klasandersson
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Thank you for making this video. I'm in the process of trying to accept my new mobility needs. The idea of people suddenly seeing me in a wheelchair terrifies me. You've truly inspired me to just embrace my new reality and if anyone makes me feel less than then F**k them 😊 . Thank you

davinab
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It makes me so happy that you bought one!!! That fear of using the chair I'm experiencing when using a cane. I'm so excited for you to be able to do things now that you weren't able to do before 💕 I absolutely love your videos!

zoegras
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I deal with a lot of pain daily and have done for years. It’s been getting worse though. My friends and family finally managed to convince me to go to the doctor about it, and I’m getting an MRI scan tomorrow and fingers crossed we find out what’s up. It’s looking more and more likely to be fibromyalgia and chronic fatigue.
I use a walking stick to get around and thankfully where I live shops and uni are near enough for me to get around on good days. However, because it’s getting worse, I’ve started looking into the idea of a wheelchair.
I have no idea where to start though.
I’m so thankful for this video because it’s given me a lot of insight into the process.
I fight a lot of insecurities, for example ime with what could be nothing, wether I really am struggling or I just need to grin and bear things, what if people harass me because I don’t look disabled, how will I be able to continue to build sets if I’m disabled, what if it gets even worse if I don’t get help, etc.
it scares me so much, and I thankfully have people around me who understand and support me and push me to seek professional help.

Labyrinth_Props
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Well done and I know what you mean, buy the time you get somewhere, then your not well, then there's getting home. I can see now how helpful it's going to be. You feel anxious about being in it because it's a new thing. It will soon feel better. Take care 😎👍

finnroohomebrewing
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well donee!! ive just found your channel and I'm binge-watching videos. :)

maryroddis
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I just bought my first manual wheelchair, for use when I'm out on longer shopping trips and stuff. I can't use it in the house, it won't fit in the doorways. But I've been practicing with it and it takes a lot more strength than I realized to wheel it yourself! It's not easy to maneuver. I haven't used it public yet and I'm not looking forward to it, I feel so self conscious.

lilsheba
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When you can, and after you've had the chair for a while, do a follow-up video with how it has helped. I hear a lot of people say how it has improved their quality of life because they can get out but I would love to hear how it it has impacted the physical well-being in a dysfunctional body that has me/CFS. Please 😊

mommabear
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If you don’t have one, I would recommend a cheap pressure cushion. The seat can be very uncomfortable in a chair and depending on how often you use it and for how long, you can be at risk for pressure sores xx

enyasavory
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Thank you for another terrific video! I just bought a wheelchair myself… I painted my last one with some acrylic paints.
Looking for some tips on decorating the new one! Cheers!

danyasimkus