'Why Does He Look Like That??'

Hello all, today I thought I'd share my story about my illness, Scleroderma and a little on how it has affected my life. We plan to do more content based around Scleroderma and to raise more awareness to the rare illness. I hope that people will find my story interesting, as there is still much to be told! 🙂

Scleroderma is an autoimmune disease that comes in two forms. One that just involves the skin and the other that involves both skin and organs. I have the form that has organ involvement or Systemic Scleroderma. As explained in the video, I am now in remission and have been for several years now. However, it was a difficult, dangerous path getting this far. You know when a doctor comes in your ICU room and tells you, "You could drop dead at any moment" You're basically hanging on by a thread of faith. I chose not to believe the doctor that day, and now here I am together with my beautiful wife! I kept fighting to be where I am today... Things are better than they were back in those days in the ICU, I do not take them for granted.

Hopefully this helps clear some things up in terms of my appearance and sickness I've fought with for years. Thank you all for taking the time to come and watch!

If you are interested in donating to help fight against Scleroderma or find more information on the disease, please see @SclerodermaUS There are many others out there fighting for a chance to live life, I hope this helps!

#couple #scleroderma #awareness #story #vlog

[krazkarla]

I can't help but notice Devine's energy in the beginning of the video when explaining his medical condition and the effects.
Girllll I can hear the Protector in your voice.
You've BEEN over people coming for your man about this and was READY to set everybody straight.
You're a phenomenal woman.

[BabvBlues]

I love how protective and supportive she is!!

[YotesLife]

I just want to admit that when I first saw a video of these two, I had some of those unwarranted, harsh judgments. This video has made me realize that the only thing "wrong" with this situation was ME letting myself jump to conclusions and believe things I knew nothing about. I chose to comment about this because I believe one of the most important qualities people can have (and what the world needs more of) is the ability to recognize when we make mistakes, learn from them, and do better moving forward. Spread love. And these two people very clearly love each other. Thanks for posting this video, you're an inspiration.

[kassandrad]

I have never felt more confident in two people being soulmates than I am right now. I love you guys!

[guiabanana]

this really raises awareness about the rare illnesses people have and to not Judge people only by their looks.

[CarlaCorc]

A dear friend of mine lost her nearly 20 year battle with systemic scleroderma in 2020. You are so lucky to have found your doctor at a young age, at the time in history.
My prayers for your continued win over the big battle.
Ignore the haters, they aren’t with it.

[ScottDivine]

Hello everyone! Thank you for watching our video, and I appreciate all the responses so far! I hope people will take a moment to understand the disease, as many of us our struggling with it. I'll be going through and responding to comments, appreciate you all! 😊

[haley]

I can tell she loves him by the way she’s learned so much about his health.

[abes]

I love how she finishes his sentences because she knows the story. She adores him ❤❤❤❤

[kimberlychin]

They've been together for like 10 years. Leave them alone. They love each other.

[PoetDarkling]

I'm so very sorry. I was guilty of judging and criticizing your looks when I first saw your videos. Now, a week later, all I can see is your beauty, strength, and purity of heart and soul. And I love watching how you love each other. I am a fan. ❤

[rebeccachilders]

I'm really sorry....my cousin has this and before they finally diagnosed her she nearly died multiple times...shes in her 50s now... looks like you and it's extremely hurtful to hear things people can say...and don't have a clue what's going on...I'm glad you're living your life...I'm proud of you and you're an amazing man

[trey]

She clearly loves you man. That's all that matters.

[PinkPicklePanda]

You guys should not have had to explain this.

Anyone who can be rude enough to insult someone with an obvious medical condition, they are awful. Ignore those people and keep sharing fun videos.

You are beautiful people, and I thank you so much for providing daily entertainment for me ❤

Keep your heads up!

[masut]

People need to stop being judgemental. Scleroderma is no joke. You guys are blessed and taking the time to explain something that is absolutely nobody's business shows how special you both are.

[snailstice]

As someone who is also seen as "ugly" due to physical conditions, you two are really inspiring. Sometimes I feel unlovable, but you guys give me hope. I'm sorry strangers on the Internet have made you feel like you need to explain yourself. I'm proud of you both for remaining positive despite it all and having the courage to open up about something that is undoubtedly difficult to talk about. I love you guys!

[ryangrider]

Obviously anyone can tell Scott has some medical condition. As for it being anyone’s business to know, we certainly weren’t entitled to know, but I am happy you are comfortable enough to share it with us. We are a community here and even though I have never personally met either of you and probably will never meet you in person I consider you guys a part of my “YouTube world” and even friends of a sort. As for the haters, they are just jealous of the happiness you two share. Anyhow, I just wanted to say thanks for sharing and answering questions that we all have had. You guys are funny as Hell, very entertaining to watch, and just awesome!

[masterofwit]

Not only have I been educated on a medical diagnosis I didn’t know much of anything about, I’ve been introduced to an incredibly successful union. Really enjoyed both!

[Kichona]

My mom has scleroderma and currently is at the end stages so hearing someone else having the same illness as her makes me feel a little less alone. Thank you for being open to us about this as I know all too well how serious of a disease it can be.

[MamaRobynR]

i love the way she looks at him so directly with such attention whenever she speaks instead of looking at the camera like so many couples do on YT. like she genuinely cares so much. Seems like a wonderful two people who decided to love each other! beautiful this is what life is all about. And i want to thank him for being so open and upfront with us about his very personal health issues. ❤❤❤