Autism and Ehlers-Danlos Syndrome - Updates

Learn about Ehlers-Danlos Syndromes (EDS), their relationship to autism, and hear about the current research in this area.

Rosie Head is a graduate of The University of Texas at Austin majoring in human development and family sciences with a concentration in early childhood and is currently a clinical intern at The Johnson Center for Child Health and Development. After completing her degree, she will attend graduate school to receive her clinical doctorate in occupational therapy. Rosie received a diagnosis of Ehlers-Danlos Syndrome after genetic testing and is passionate about spreading awareness, especially within the ASD community where rates of occurrence seem to be higher than the rest of the population.

00:0 - Intro
3:00 – What is EDS and HSD?
5:00 – Autism and EDS overlap
7:10 – Maternal susceptibility factors
9:30 – Fragile X Syndrome and premutation
12:30 – Nucleotide repeats
15:40 – Joint hypermobility and FXP
19:30 – FXP and EDS/HSD
21:35 – FXS model for EDS and autism
25:15 – Thanks and acknowledgments
27:00 – Shared symptoms
29:00 – Sensory and coordination issues
32:00 – Autonomic and immune system dysfunction
34:30 – Early sign of EDS
39:00 – Early interventions and gaps in care
43:00 – Q &A