Medical Stories - Hereditary Amyloidosis (HA) Dylan's Story

A young artist named Dylan Duncan is dealing with a rare and fatal genetic disease called Hereditary Amyloidosis, a disease that he witnessed slowly kill his mother and aunt when he was just a teenager. But until recently, see how Dylan's life has dramatically changed from a certain and gradual death sentence to renewed hope and greater longevity under the care of Dr. John Berk, a pioneering expert at Boston University School of Medicine.

[blancarubi]

wishing you the best! lovely cat, song, and paintings!!! ✨

[peaceson]

You don't know how much this has helped me. I was diagnosis a few days ago and instantly started thinking about my death. I have a wife and 3 year old twins. The news devastated me. I start treatment hopfully in the next few days. Thank you for sharing your story. I feel like I can breath a little better now.

[MyVaccident]

I'm awaiting a possible diagnosis 😢

[SharkyJ]

I relate so much to the feeling of knowing and not being able to envision yourself as an older person. I’m a 39F with hATTR, art and music keep me going as well. 💓