Celebs With Extremely Rare Medical Conditions

We may tend to think celebrities lead charmed lives, but they've got a lot weighing on their shoulders. It's a pretty exclusive club filled with scrutiny and judgment, and some celebs are carrying more weight than others — and it's not because of the entertainment industry. Instead, these celebs are facing medical conditions few other people in the world know what it's like to experience.

Many of these celebs embrace their conditions and use their platforms to spread information about what makes them medically unique, whether it's a chronic disease that threatens their livelihood or a unique condition that leads to photographic memory. Between Atticus Shaffer, Katie Leclerc, Gaten Matarazzo and more, these are celebs with extremely rare medical conditions.

#Celebrities #GigiHadid #BillieEilish

Billie Eilish | 0:00
Atticus Shaffer | 1:34
Katie Leclerc | 2:43
Gigi Hadid | 3:44
Marilu Henner | 4:49
Gaten Matarazzo | 5:59
Emily V. Gordon | 6:54
Danny DeVito | 8:21
Robin Roberts | 9:36
Kim Basinger | 10:42

[pigeonwheels]

While different. I was paralyzed a few years ago and getting used to being in a chair and everything that comes along with it is very difficult. But I’ve learned to love myself and embrace it.

[peggyknecht]

What about Vincent Chiaverelli? He was a famous Character actor with Marfan Syndrome, a rare genetic disorder that affects the connective tissues. It causes aneurysms, skeletal problems, eye problems, stretch marks without pregnancy. I also have this disorder, and almost died from it. It affects about one in 500, 000 people. Jonathon Larson died of it the night before Rent moved to Broadway.

[rose-pbod]

I live with a spinal hemangionoma. There's no cure. No surgery. If it bursts I will pass away. I accept this and live everyday fully. I am more acutely aware I don't have the expected life expectancy average people have. This makes me more grateful for each day and experience.

[MicheleHow]

Being a Mother of a child born with a rare Genetic Syndrome, It's tough. I didn't know what my daughter's future -life span was gonna be. God has TRULY BLESSED her. She is 25 & a mother now. I have had to fight with the school's system here in Georgia because of her disabilities & them NOT following The NO Child left behind Act. I have spent my life at hospitals & doctors offices. God Bless these people & I pray for a happy, healthy & long life for them all.

[chocolate]

As someone that deals with Meniere's disease on an almost daily basis, it's almost impossible to think of this as a uniqueness.

[sherijobe]

I have CRPS ( it's nerve damage) all I feel is pain in my hands and arms.no one understands it because they can't see it. There is never a time when I'm not in pain. People who know my condition will ask how I'm doing, I will say fine even if my pain is up because People don't want to hear it all the time.

[Noctessa]

Awww Danny Devito is such a sweetheart and loves babies. I actually met him at PDX airport in 1987ish. I was running away from an abusive relationship with a face so awful looking my own mom didn't recognize me and had my baby on my hip facing opposite me. While I was talking to the airport agent I felt my baby kicking and laughing, turned around to see a sweet man laughing, talking to and tickling my baby. He nearly fell over backwards when he saw my face or I probably would've been able to talk to him. I asked the agent as they escorted me to the plane if he thought that was actually Mr Devito and he replied "yes we get celebrities all the time!" Omg I was over the moon 🥰 wish I had the guts to actually talk to him... He seems to be a genuinely kind person!

[mikachan]

Hold up, since Gigi has Hashimoto's disease, why the hell is her mom, Yolanda, forcing her into so many diets to the point where she can't even enjoy her own birthday cake?

[tobiojo]

People who have medical conditions or disabilities should embrace their uniqueness and don't let anyone or anything stop you from achieving your dreams even when the odds are stacked against you.

[stonecoldwwe]

After 37 I found out I have PMG, Polymicrogyria, it's in my brain! The folds in my brain weren't developed completely. I found out after I started feeling funny and having seizures. I'm now 47 and doing ok!

[AlohaLowah]

Kim Basinger a narcissist? No. Alec Baldwin a narcissist? Yes. A resounding yes. I think ol Billy Baldwin got his wires crossed there.

[carinagrace]

I have synesthesia and I’m aspiring songwriter. I like to think of each key having a certain color associated it. For example, if I write a song in the key of G, I’m writing it in teal, cause that’s the color I associate that key with. I associate certain emotions with each key/color of music. It helps me get deeper with the feeling in my music rather than just the chord progression and lyrics do. I’ve always had a strong connection with music because of my condition. It doesn’t bother me to have synesthesia, I only see it as an advantage as a songwriter

[KaylaPearlCPNinja]

I have spastic hemiplegia cerebral palsy and ADHD. The interesting part about my condition is that the type of brain injury that caused me to develop cerebral palsy is so rare, yet it can be catastrophic depending upon how severe it is. I had a grade 4 intra-ventricular hemorrhage and hydrocephalus 2 weeks before I was born. My mom has told me that the chances that I would have developed the milder form of cerebral palsy that I have were very low, but it’s still amazing that I am able to do things even though I don’t have a lot of mobility in my left arm/hand and left leg.

The type of brain injury that I had actually has a 60% mortality rate among babies born prematurely. I was born 7 weeks premature. Cerebral palsy is more common than what people might think, but most of the time, people tend to think about the more severe cases of cerebral palsy that affect other people, and not the milder forms like what I have. I was diagnosed with ADHD, anxiety, and persistent depressive disorder in my junior year of high school as well.

When people give me pity for what I have experienced, I try to explain that there’s no need for pitying me as I am really happy that I don’t have my disabilities as severe as other people do. My mom also told me that I probably would of had more mental disabilities, had I not gotten the early intervention and diagnosis of my form of cerebral palsy that I have. I also hope that one day society will ultimately destroy all stigmas attached to people with disabilities alongside stereotypes as well. Society is very slow to accept the fact that people with all kinds of medical conditions are just as capable of doing things as people who don’t have medical conditions can.

[JunaidWolf]

I have IBS and it’s really annoying expecally when people think I’m just avoiding things cus I don’t want to do it it’s like they don’t understand that it makes me use the bathroom all the time and makes me sick

[saulcontrerasOfficial]

Devito is a a dwarf? He's a tall dwarf.

[iheartnavyblue]

Hashimotos, while I'm glad is getting much deserved attention, is in no way rare.

[sheilarough]

Marilu Henner once played a character who had the same condition as she has in real life, but was also in the early stages of Alzheimer’s. Now that would a strange combination

[donnazasgoat]

I'm on the Autism Spectrum and also experience synesthesia. I never knew that everyone doesn't experience it like I do.

[courtneypuzzo]

some of those conditions aren't as rare as you think for example between 2%-10% of women have Endometriosis which is between 3.4 million and 17 million as there are roughly 170, 000, 000 women in the US

[ipponymous]

I was so surprised that Stills came up on this list. My husband was recently diagnosed with Stills on top of this Rheumatoid Arthritis, and I had never heard of it before and have never heard it mentioned anywhere else. It is a rough disease and has some very confusing symptoms, my husband was in the hospital for nearly a week and had to have a whole bunch of other conditions ruled out before they were able to come to the diagnosis. He is finally on medication that seems to keep it under control, although he still has flare ups from time to time.