The Johns Hopkins Comprehensive Neurofibromatosis Center
How to cure Neurofibroma? - Dr. Nanda Rajaneesh
Video 216: Neurofibromatosis Type 1 (NF1) & Type 2 (NF2): Genes, Pathogenesis, and Clinical Symp...
NF2 - neurofibromatosis
Комментарии
Good job Dr Lee
You forgot Lisch nodules tho
shixoooooooo
I have Nf1. Low key sucks, but I suppose it could be worse. At least I’m not a ginger.
TexanSupremacy
I have NF2 and came here to learn a bit about it, you seem like a good teacher but you lost me at shwanomas
slimjimsky
May I know if there is any medicine being tried in the world to control or cure this disease? Can I hope for a cure?
ravindulakshan
Hello. I have Nf1. I am 53. I've had many tumors removed in my lifetime. I have had issues with my hearing since 2018. I hear static and buzzing at the same time. Sounds are getting louder and louder every year it seems. Does hearing loss come with Nf1? I've been to ear doctors and was told get hearing aids. I have been searching for the right treatment if there is one.
Anna_M
Eu tenho manchas de café com leite. E tenho nódulos no meu corpo, tirei alguns nódulos maiores eu sofro muito, eu tenho um neto ele tem mais de 68 manchas de café com leite no corpo. Ele tem 10 anos, não sabe ler, não escreve seu nome direito, e ele foi pra 6 seria e não sabe nem escrever. É muito sofrimento, ainda os nódulos ainda saiu, sua tem que fazer uma cirurgia ela tá com módulo na coluna. Eu choro muito de tristeza. Se tivesse cura seria bom mais não tem. Eu penso muito no meu neto preocupada dos modelos sair nele ele tem muita manchas
katiamaria
please help my son have this kind of nf1
ynnearguelles
I have neurofibromatosis type 1 learning difficulties and language difficulties