This is Frustrating!!! 🏥

[Vlog 6.20.23] - Mary ends up with an IV in the infusion center with unknowns about the future of her port-a-cath.

Welcome to The Frey Life daily vlogs! We are Peter & Mary, a married couple in our early 30's, showing the ups and downs of everyday life with #CysticFibrosis, a genetic lung disease that Mary was born with. In August 2019, Mary started a new CF medication that changed the trajectory of our future, and life has changed dramatically - including our son, Elijah, joining our family in December 2021. We also have an adorable standard poodle, Oliver, and a hairless sphynx cat, Harry. It's our hope that these videos can be an encouragement to to celebrate the little things in life and find joy amidst a world full of hard realities!



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[OrpurElsa]

I've been following you for like 5 or 6 years now and I'm so happy to see you're not caughing so much anymore and how your medication changed your life for the better 💜 (I'm not the type of person to write commentaries on videos but I'm just so happy for you)

[patsymullins]

Glad to have all of you all back. Hope nothing was wrong

[suehamilton]

God bless you sweetie! He always has us! 🙌

[summerfun]

It’s so good to see you driving more! ❤️

[penelopepolinsneemeyer]

Hi Mary, I’m so hopeful that the CF team are going to sort this for you. I’ll be keeping you in my prayers

[Loserkid]

Mary you inspire me so much . Im a severe asthmatic and i struggle so much and im always feeling down .
youre always upbeat and positive and it makes me so happy to see someone with chronic illness actually happy and not letting it get to them !!!! ❤❤❤❤

[imogenoliver]

Yay! It sounds like you guys got the IVIG situation figured out. I hope your port doesn’t give you too much grief Mary 😬. Hope the family is going well ☺️.

[BNHAalltheway]

Glad You guys are ok have a good Tuesday

[mayablock]

You are such an inspiration! Sending lots of love and prayers.

[babybluecheeks]

Youre so brave and strong, you have the patience of a saint.

[lauramoore]

Thanks for the message, one day at a time!

[katherynkennedy]

Love to just sit and listen to the rain. We get so very little, but when we do it's usually torrential here in Mesa, AZ. I've followed you for years and think back to so many months that you had to be in hospital and how well you are doing now. Such a blessing for you and Peter.

[elizzabethbarnhart]

I can not get a line at all anymore even with their sonogram machines over 34 years of IV treatments and 26 surgerys. Unfortunately hospice comes to my house Friday I'm only 54 and I've been homebound 11 years. I pray you get nothing else with CF because I did ok in my early 30s but then got 6 more immune disease list my large intestines in 2012. My RA is stage 4 in my organs. My wrist are held together by 7 inch plates and my feet. I'm in severe chronic pain 24/7 with no pain. My husband and I have been together since age 15 married 35 years together 38 but the lady 9 years I feel like I'm just a patient it sucks. We have 3 hairless cats a Sheepadoodle 😊❤

[jennifercastro]

Hi Mary and Peter, I've been watching you for a couple of years now. Started watching due to the topic of cystic fibrosis... (I had two cousins who also lived with cystic fibrosis). I have learned so much by watching you both. First I gained a better understanding of what my cousins really dealt with regarding CF. I grew up in the 70's -80's and just thought of them as my cousins. My parents shielded me from a lot of what was happening with them. I am thrilled with the advances in CF and so elated how this has completely changed your life, Mary, and everyone in the CF community. My faith in God has also been strengthened by watching you both. God and your love comes through in all your videos, even in the smallest ways. It's very uplifting and a good guide in how to live with God in your life. Thank you both. Peter... I know you have some sermons and podcasts on here. Do you post any of your weekly sermons? I have started to watch what I am able to find, but they seem to be from years ago. I don't have a church I attend, but have really connected to your sermons I have seen and would like to be able to watch them weekly if you do post them somewhere. Thanks for all you two do. You are making a huge impact in all you do. God bless you and your growing family.

[mw]

Ugh. I had my port removed while awake. It had been in 4 1/2 years. Not another port for awhile for me thanks to Trikafta. Good luck. It will all work out.

[michellerobinson]

Hi just found you guys (in the last couple of weeks I think) I have been binge watching a lot of your videos. I am from the UK 🇬🇧 near the south cost. I have Cerebral Palsy and enjoy watching how others with conditions and disabilities navigate life. Love your family xx

[ivarkofPA]

Im glad everyones safe despite there has been some violent weather happening last week or two with tornado outbreak in the eastern part of the state not far from the rocky mount area of state one of those was a
Major EF3 one in vicenty of interstate 95 corridor.. I guess this is another port checkup appointment you were going through .. Thankfully
Its not your treatment medication wearing off or being rejected..
Todays EPISODE IS RELEASED on AUGUST 1st which is MARYS FREYS
34th BIRTHDAY MONTH is Starting already it will be here in about 17 days away. Which will be followed by YEAR 10 of the frey series on AUGUST 23rd.. two key dates coming up in AUGUST!!! ❤❤🎂👍

[thegatesofdawn...]

I wish you well, and hopefully, you will get a good solution. Either a fix or a new port.

[libbym.]

Wow. So I’ve been navigating the crummy world of medical unknowns too and feeling a little discouraged. Our church did Ready Set Move for VBS too and hearing you sing that song felt like a sign that it’s all going to be okay. Thanks for being an encouragement when life feels a little darker than usual 💛

[lc]

Oh I know that pain! I had a nurse put my infusion needle in my wrist one time instead of the top of my hand and it was hitting the nerve or against bone or something and every time I moved or they moved the tubes I jumped from the pain shooting up my arm. They finally had to take it out and move it. Hope they can get your port sorted out soon.