Michael's Apert Syndrome Journey at Gillette Children's

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Since infancy Michael has been treated for Apert Syndrome at Gillette Children's. Shortly after Michael’s birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.

Apert syndrome is a genetic disorder caused by a mutation on a single gene. Thanks to his surgeries and treatments at Gillette, Michael is developing normally. His parents say he's a bright, happy child, with a delightfully mischievous personality. And he’s always smiling.

In 2014, Michael was chosen by Children’s Miracle Network Hospitals as the 2014 Minnesota Champion child representing Gillette Children's Specialty Healthcare. The Children’s Miracle Network Hospitals Champions’ program recognizes children, like Michael, who have triumphed despite severe medical challenges and brings attention to the important work being done at Children’s Miracle Network hospitals such as Gillette.
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My son is 10 weeks old with apert syndrome we just has his first skull surgery yesterday. Thank you Michael forgiven me Strength

docaro
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My son was also born with aperts and to all the parents that have children with aperts God bless you because we want nothing but the best for are children and Michael you keep fighting and stay strong God doesn't make mistakes he makes beautiful things like you 🙏👍

roigken
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This kids smile can light up a room. He's a true blessing.

lemazingkingdom
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My mother was born with Aperts. I know for a fact Michael can have a full and wonderful life. You are so beautiful ❤️

anothersarah
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I love this kid, he has a awesome personality.

maryrichardson
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Really an inspiration for the rest of the world for being humble and appreciative of the health, we often ignore or take it for granted

Docdoc-pd
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My lil sister has apert and she is without a doubt the happiest person in the world

stormkleinveld
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Michael rocks! He needs his own YouTube channel!

gme
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what an amazing young man. I too have a son with apert now 5.5. i often wonder what the world will think of him and his future. we love and admire him and feel his pain with every operation and hospital stay. he starts school next year and we are both excited and anxious for him. What will the others say, think, will they play with him, will they be nice to him and the questions go on without answers. for now anyway. your video gave me some calm in the storm to come.
i know he will have challenges but what kid doesn't. i know we are all different. i know the world is basically kind.
i know we love him so much it hurts. i just want to protect him from the negative. but saying all this the world is HIS oyster and he truly is the pearl. i know it will all work out for him and if there is a stumble we will be there to catch him.
BUT TRULY ISN'T THAT SAME FOR ALL OUR KIDS.

JH-yebw
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I like his parents' attitude and how they helped him have a positive attitude too. E.g. how they explained the purpose of each surgery so he understood.

junbh
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what an awesome and adorable kiddo...God bless him

aprilbess
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Michael is a Brave little boy. He is adorable and very intelligent. I just love his personality, he’s an inspiration! 🥰❤️🙏🏼👍🏼

princessgigi
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Awww, bless his heart! What a smile he has!!!! He lights up the room!!!!I love how you explain his surgeries to him. He’s in such loving hand with such great parents.
Yep, he is different, but he’s just perfect that way! Thank you for your inspiration little buddy.❤️

Givwthyrhrt
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I also have an Appert syndrome brother and he's amazing in his own special way. We try to go him for surgery but we can't afford. But he's doing well today and very healthy. God bless you, Michael!

marianetalatayod
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beautiful people.... they deserve so much more...

mandog
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He's so beautiful!!! He is so smart too. You rock Michael!!!

gemmaminers
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You guys rock! As parents! KUDOS TO YOU ALL!

valsimon
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Thank you so much for sharing your story! Great job Micheal Whatvavtrooper! My name is gailen Reynolds. The mother of Joshua Perry. My son is 42 years old last montgand was also born with Aperts Yes you do know as the room suddenly goes silent, when your expecting cheers? Josh is just an All star! He’s a dad fferrnt sort of fellow. He is the second of my 3 sons. So blessed and honored to have been chosen to be his mother! He does have a website . He taught himself to crafts ftom the book we sir let’s fit Dummy’s! I would love to be able to bring the 2 together one day!!it blows me away how much Micheal reminds me of Joshua back . And that beautiful sweet nature. My heart ❤️ busts burst into one big smile when I watched him. I miss my little boy! He’s still a sweetheart. Considering the journey he’s survived so far!!contact us anytime. My the Lord bless and keep you all in His loving armz

Earthangelfish
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God bless this amazing little boy and his family. His struggles seem so huge . . . yet he is so positive and so happy! I credit all that to his amazing parents and to his crazy, forward-thinking doctor. Your family's story gives me great strength and a huge smile of love and positivity. Wow!

lisacummings
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God bless this family especially Michael and above all the doctors! He's one of gods special angel!

deboralavalley