Self-Advocacy in Health Care

In this workshop the presenters cover the importance of self-advocacy in health care settings and ways to support youth and adults with intellectual and developmental disabilities to communicate with health care providers and be actively involved in health decisions. It includes discussion of existing tools to help plan for and engage in health care appointments. This workshop is for anyone with an intellectual or developmental disability and/or their caregivers.

Presenters:
Wanda Mahoney, PhD, OTR/L, Washington University School of Medicine, Associate Professor, Occupational Therapy and Medicine
Katie Walbrun, OTD/S '21, Program in Occupational Therapy, Washington University School of Medicine

00:00 Introduction
02:48 What is self-advocacy in health care?
08:47 Improving communication through self-advocacy
15:04 What you should bring with you to a doctor's appointment
16:21 What you should do if you don't understand what the doctor is saying
17:15 Why it's important to participate in your doctor's appointments
17:56 What to do if your doctor is speaking to your support person or parent instead of speaking to you
20:32 Today's healthcare visit form
26:53 Preparing for your doctor's appointment
34:14 Practice filling out the Today's Healthcare Visit form before your visit
48:38 How you can feel more comfortable with your health care team
51:59 Tips for prioritizing concerns for your annual exam appointment
53:24 How parents of adults can still help their child prepare for their doctor's appointments

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