Chronic Granulomatous Disease (CGD) - IDF Reel Stories, Kathryn & Cameron Paul

IDF Reel Stories is a video community designed by the Immune Deficiency Foundation (IDF), to encourage and empower fellow patients and their loved ones affected by primary immunodeficiency (PI). Viewers are able to select from a robust playlist of video testimonials that touch us on some level -- whether as individuals, families or as members of the IDF community. The video stories cover a wide array of issues and topics and can be searched by Status, Patient Life Stage, Messages, Disorders, and Treatment Options.

[lindastiles]

I’m so sorry! My grandson was just diagnosed with this.. bless you

[sarahszekeresh]

Thank you so much for sharing your story and for your transparency, honesty, and the clear love you have for your kids. We're in the same boat, with a one year old who's CGD is managed by medication, planning for our BMT. The not knowing has been so challenging---first a diagnosis, then management and on-going lifestyle choices---there is so much not knowing. Learning of a community and hearing the stories of others in the same position has made it so much easier to feels resolve in the choices we make, even when we don't always know what is best, or right. I'm grateful to you for this gift of sharing, and wish the best for health for your family in the future.