Lupus Patient Success Story - Lupus Affecting the Brain in a Young Patient

Hear the inspiring success story of a young lupus patient, who battled the disease affecting his brain. Learn more about lupus and how it can impact different parts of the body. #lupus #lupusawarenessmonth

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👩🏻‍⚕️ About Me: Dr. Diana Girnita is a distinguished, double board-certified physician specializing in Rheumatology and Internal Medicine. Holding a Ph.D. in Immunology and having completed rigorous training at Harvard and other top-tier institutions, her expertise in rheumatology is unparalleled. 🎓🏥

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[justsomerandominternetuser]

I was diagnosed with Lupus about 2.5-3 years ago. My doctor used a blood test, and my symptoms I listed and he noticed the butterfly rash on my face. Then he tested my blood pressure (which was normal) and temperature (low grade fever) and I was then told I have Systemic Lupus (SLE) and given an anti-malaria drug. I also have seizures (mix of grand mal and petite mal, where I basically lose consciousness for a short time) and every time I have one, a fever starts within the day and I have a flare up of lupus pains. The pain can be a dull pain or like a broken bone everywhere.

Long story shorter, lupus sucks and it makes my medicine cabinet look like an entire pharmacy. I’m only 24 years old (soon 25.)

Best of luck to anyone who deals with this frustrating and horrible disease.

[bloveall]

oh, the story is somewhat similar to what I experienced.. It was 10-11 years ago, I had symptoms like stroke, bell's palsy, confusion, sleepy, decreased speech ability, unable to follow lectures properly, there is no strength to write, to the point that I can't understand a passage (even though I know what letter it is) After almost 2 weeks of experiencing symptoms, I finally went to the hospital. The first diagnosis was a stroke, but my blood pressure was normal. After doing an MRI, there was pretty large lesion, indicating inflammation. The doctor diagnosed me with inflammation of the brain. I was in the hospital for 1 month. After discharged from the hospital, I still had a problem with my speech, It got pretty bad when I'm in bad state or feel really tired, or when I was stressed. In 2021 the symptoms started to get worse, so I went to the hospital. Go to a neurologist. did another MRI, and the result was an additional lesion, although not too large. the results of the examination of the cerebrospinal fluid found no signs of bacterial or viral infection, and neither did Multiple Sclerosis. The doctor told me to do the ANA if test, etc. The results showed I had lupus. After 9 years of being misdiagnosed, I was diagnosed with lupus. Right now, I'm still on treatment. My speech ability is getting better (although not as normal as before), and starting to be more stable.

[irishchick]

I have lupus SLE and I remember me going into a Kohl’s and feeling very dizzy, loss of balance and not knowing where I was. This has happened to me a few time even just getting my medication I just blanked out at the cash register and the pharmacist said hello are you ok I just snapped out of it. Also I started to forget stuff, appointments, my usual recipes and my everyday activities, spelling words. I decided to see my neurologist and told them everything that’s been happening I ask is this dematia, Alzheimer’s. So she sent me to a specialist that gives you a test thoroughly, they asked me questions I answered it then they gave me a my results witch was I don’t have Alzheimer’s or dementia but, I do have Encephalopathy due to lupus and that was a few years ago. Today I’m still dealing with short term memory loss and not able to spell words. I was so upset with myself I just feel terrible about myself between lupus, migraines, not able to get my words out correctly.

[sugarbeesour]

I was diagnosed with lupus recently. My neurologist doesn't think my random neuro symptoms aren't related. The right side of my face goes numb and spasms. The spasms move into my neck, shoulder, and down my back into my right hip. My speech is affected. One doctor told me it was hemiplegic migraines because migraine headaches and severe muscle and back pain accompanies them. The muscles in my neck get so tense they feel like rocks under my skin. I've been in P.T. for it for 10 months with no improvements to the spasms. I'm thinking it's the lupus because it all flares up at the same time.

[dreamcrone]

Pregnancy and birth brought on my Lupus. I have intermittent memory issues associated with hormonal changes.

[nicolebartlein]

This is my MRI result. What does this mean?
It says this: Scattered T2 hyperintensities in the white matter. This could be related to patient's known lupus. Differential includes multiple sclerosis, vasculitis and prior trauma or infection.
2. A single right temporal microhemorrhage is nonspecific.

[nidzainfante]

I just found out I have lupus.Im always swollen tired. My legs get cramps? Any one had this? God bless

[lilianmuhonja]

I don't remember most of the things I was diagnosed with SPL at the age of 17

[rukhsanagulshairrukhsana]

My younger sister death with lupus attack in center brain. 7 march 2022 age 35

[TheChristopherBlake]

👏👏👏👏👏👏 WOW & thank you !!!! Amazing story .

[aymenmirza]

Can avoiding the food having high vitamin K content like green veges, pomegranate, plums can reduce its affects somehow?

[wasanawijesuriya]

tell me I am a lupus patient since 2009. But recently my doctors are found sle in my brain . I have a terrible headache . After the MRI they started to cyclophosphamide iv .don't know what to do. Disappointed .. is this treatment going ok.or everythings going to be end

[nikitasabarwal]

mam i am suffering from lupus panniculits
mam there is a acute pain in my head from left side
there can be involvement of brain?

[holysnappersASMR]

is lupus that affects the brain a separate diagnosis of autoimmune encephalitis/something else? before it's diagnosed do they need to make sure its not anti-nmdar encephalitis?

[marianglisson]

The most important things Dr.s must do is ask questions!