Bobby Jones CSF: Ask the Expert with Fraser C. Henderson, Sr., M.D.

In our second virtual Ask the Expert, Dr. Fraser Henderson Sr. takes real questions from patients and caregivers affected by Chiari, syringomyelia and related disorders.

Some of the topics discussed include craniocervical instability, atlantoaxial instability, Ehlers-Danlos syndrome, Chiari malformation, dysautonomia and tethered cord syndrome.

Dr. Henderson, a well-known expert in craniocervical instability, emphasizes the importance of understanding the overlap between symptoms of instability, Chiari, EDS, and even mast cell activation syndrome.

This presentation was given on Thursday, May 28, 2020 and was presented entirely online. (2020)

Note from Bobby Jones CSF: We want to take a moment to sincerely thank all those who donated in support of this virtual presentation. No one at the organization was expecting that much generosity during such a difficult time for us all. From the bottom of the hearts of our boards, staff and volunteers, we want to thank you for your donations. Your kindness continues to motivate us and makes us all the more certain that this work is valuable and helping the people who need it. Thank you.

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Is Dr. Miller in Boston referring to Robert Miller in Lawrence?

[debbiereiter]

To the one that has chiari symptoms and was told you don't have it the same thing happened to me. I had an MRI and they said I didn't have it but I did. I had another MRI ten years later and they found it. The same thing happened to my mom but in reverse. I was told that a standing MRI will detect it better by my Doctor but that was after I was diagnosed. Good luck