A Mom with ALS (Lou Gehrig’s Disease)

Sara was diagnosed with ALS and told she had 3 years to live. Upon learning this she made the goal to survive until her children graduate high school. Now 14 years later, Sara is getting close to her goal with help from her kids.

SBSK's Socials

[ShippingZone]

Hello everyone, I am Emily Sara’s kid and I’m just typing to say hello, your words mean a lot to me and my family and we thank you for the kind words. We are all doing great I am in my second year of college and in a wonderful relationship with my girlfriend ❤️, im studying hard and still work as a caregiver to my mom, my brother is graduating this year 🥳 and going into the navy after he graduates and is also working hard and studying hard. We hope you all are having a great day and we thank you for listening to our story

[Kai-ebfv]

A neighbor of mine had ALS, the speed at which it progresses is no joke! Her perseverance to keep fighting for so long is incredible. This woman is so kind and such a good mom, it is beautiful to see her relationship with her children

[paulamucinga]

My husband is battling ALS. Please reach out to anyone you know with this disease. She is right, the person does not change-only the body!! The caregivers play a big role, and I commend her daughter.. being my husband’s caregiver has taught me how we sweat petty things in life...

[garymarino]

I Lost My Sister To ALS, She Died 2009 She Was 56. This is a Horrible Illness. God Bless 🙏

[luchewigg]

my mom just got diagnosed with ALS. thank you so much for making this.

[anikawinde]

I watched many SBSK videos and today my mom was diagnosed with ALS too. I hope we can adapt as well as you. Wish you all the best!

[bellagramz]

We need continued research and 🙏🏻 for a cure….. This teenaged daughter is an absolute gem. I want the young son to know he can SCREAM, and SHOUT & let it ALL OUT; good for the soul… Lots of love

[kaylabarnes]

I have some great friends with ALS. You're such a great mom Sara.

[elisabethsalmon]

This brings sincere tears to my eyes...I lost my adopted Mom, years ago to ALS. Such a terrible, horrible way to pass...she finally suffocated. 😢😢😢

[Tranquility]

I lost one of my dear childhood friends to ALS last January. She had one of the most progressive forms of it, so there wasn’t a lot of time left after her diagnosis. I miss her. She was eligible for the eye-gaze computer, but sadly declined so quickly that it couldn’t arrive for her in time. Yet, I must say that she always remained positive throughout it all, always hopeful for research and a cure, always looking at the bright side, finding strength and happiness spending time with her family and friends, always caring and compassionate and thoughtful of others. I’m so grateful for her friendship.

God bless Sara and her beautiful family!!! Wishing them well, and for a cure for ALS!!!

Edited to add: Sara reminds me VERY MUCH of my dear friend.

[demijour]

What a wonderful mom even with all the obstacles she encounters, you can tell she loves her kids dearly You can also see that ALS affects her kids and that they are still learning how to communicate. It is still hard for them to see their mom like this. I thought her son was almost going to cry when talking about his mom because of the love he has for her.

[ababyharpseal]

Sara's kids look just like her, especially her son!

[fynssp]

My mom would love the Tobi device. She passed away last 2019 to ALS. We communicated using a whiteboard when she can still hold and write a marker or pen. Some days she would prefer answering yes or no questions only cause communicating takes alot of her energy. I suddenly missed my mom after watching this. Stay strong!

[ZNB]

Best interview ever. Loved every minutes. The strength, patience and passion for life.. remarkable!

[ew]

I've been watching these videos for quite some time and always found learning about other people's struggles fascinating. This year I had 2 people in my family diagnosed with ALS. As a matter of fact, my uncle that I am a caretaker for is currently in the hospital due to ALS. Watching this video is both sad but it's nice to see that other people have made it work for them.

[OK-pifq]

I can’t imagine the fear she had when she thought about having two little kids, and hearing she had 2-5 years to live. I’m glad she made it to their adulthood, but she had to spend years in fear.

[janiceyoung]

My husband passed away from ALS in 2017, so I know what your feeling.Stay strong,

[snailcat]

My grandfather battled ALS for six years. He was such a lovely person who was an artist, a drummer, and a woodworker, but as his body started deteriorating, he couldn’t do the things he loved anymore. It was sad to see his body break down, especially in the years it went undiagnosed. He was such a fighter, and he will forever be missed. This lady’s spirit reminds me of him. 💕💕💕

[pedrolucero]

What a amazing mother! It is just unbelievable how many years she is fighting with ALS. 14 years it’s fantastic. Keep fighting I wish you all the best with your life and your lovely family

[JojoJojo-qrye]

What a lovely family, God bless you !