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Ethical, legal and social issues in epigenetics (ELSI): Dr Stephanie Dyke
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Epigenetics, Precision Medicine & Open Science: Evolving ELSI
Advances in epigenetics and precision medicine rely on access to extensive datasets from hundreds of thousands of individuals, including data from clinical healthcare settings, and ideally representing a diverse range of populations globally. The steady expansion of data sharing and Open Science policies aims both to facilitate progress in such international, “Big Data” research, and to improve the translation of research findings into widespread healthcare benefits. This presentation will focus on the challenges these current research developments create for the ELSI community, and on evolving ethical and scientific norms and practices to address a changing research landscape.
Dr. Stephanie Dyke’s research experience spans biochemistry, science communication, bioethics and science policy.
Advances in epigenetics and precision medicine rely on access to extensive datasets from hundreds of thousands of individuals, including data from clinical healthcare settings, and ideally representing a diverse range of populations globally. The steady expansion of data sharing and Open Science policies aims both to facilitate progress in such international, “Big Data” research, and to improve the translation of research findings into widespread healthcare benefits. This presentation will focus on the challenges these current research developments create for the ELSI community, and on evolving ethical and scientific norms and practices to address a changing research landscape.
Dr. Stephanie Dyke’s research experience spans biochemistry, science communication, bioethics and science policy.
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