NORD - Cyclic Vomiting Syndrome

Cyclic vomiting syndrome, or CVS for short, is a disorder characterized by recurrent or cyclic episodes of severe nausea and vomiting.

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Our Vision: Everyone who cares for someone will learn by Osmosis.

[arichuux]

i have cyclic vomiting syndrome and watching this video made me cry because cvs is such a uncommon disease that doctors don’t study it as much (at least where i’m from) so barely anyone talks about it and finally hearing someone talk about it in a professional way makes me so happy because it’s spreading awareness for rare diseases like cyclic vomiting syndrome

[aqua_Laura]

I've been hospitalised 7 times and just been diagnosed with this. It's awful the pain is unreal and takes me a couple of weeks to fully recover. This is such a good video explaining it.

[Lexipoo]

Good video and simple to understand. My daughter suffers from this and it took a lot of testing and 3 years to come up with a diagnosis. I hope this helps anyone suffering

[EvanRobinson]

Thank you for not bringing Marijuana into the equation. My fiancée has this and every time she gets sick, she trys smoking pot first. It works sometimes, sometimes it doesn't, but every time we take her to the hospital they claim it is because she smokes pot and the doctor does not take it seriously. She has been to the hospital for it more that 30 times since I have known her. We tried NOT telling the doctors about her smoking Marijuana and they just do a urinalysis, so when she tests positive for Marijuana, instantly the doctors attitudes change and they blame it on the pot. Every time... I personally am getting cyclic vomiting syndrom from the stress of the doctors assumtions instead of actually trying to help her. (Bad joke, but kind of serious at the same time.)

[sophiaabbinante]

Can’t watch this video, I threw up after minute 2. 😪 I’ve been throwing up everyday for the past year in the morning and throughout the day. The doctors haven’t diagnosed me yet. I wish and pray I find answers soon.

[thebibleisfordummies]

My sons CVS was finally SOLVED! 🙏
It’s completely healed now. It was not a stomach disorder like his gastroenterologist thought. Instead, by a fluke, at a new ER, they ran more tests and after imaging his kidneys they found a polyp in his ureter (the tube leading from his kidney to his bladder) that would occasionally block the flow of urine, where it would build up in his kidney and cause excruciating stomach pain (really it was kidney pain that he felt in his stomach) and vomiting. The polyp was removed and he has never had a single episode now in years! I know this may not solve everyone’s CVS, but I hope it will point some of you toward other potential downstream organs, not just the gastro region.

[srikrishnakanugula]

I'm a medical student and one of my friends is suffering from this condition. It's really a bad and debilitating condition. Thank you for making a video about it.

[NiEvans-ln]

I was misdiagnosed at the age of 7 and finally at the age of 14 ( at that point) was finally diagnosed after constant throwing up for 3 weeks. This syndrome is rare but this video explains it so well, I feel so recognised <3

[HariJ-youtube]

This video is a god send. I find it so hard each time repeating and explaining my CVS to people just to hear them say “are you sure your not just sick” I was diagnosed in 2018 with cvs. And I have episodes every month. So now I share this video instead of explaining this disease. ❤

[ExplorerValenis]

Both me and my sister were diagnosed with CVS when we were very young. Of the times that I can remember in my childhood, most frequently my episodes were triggered by one of the following -going too long without food/water -overheating -pain (large scrapes/headaches/pulled muscles or growth pains) -exhaustion -long periods of stress or severe stress. My mother has medical experience so that helped a lot with knowing her way around medication and being able to manage symptoms well enough to avoid being in the hospital more often. Both my sister and I would end up having to go to the hospital for fluids when we had long episodes, iv medicine and fluids gave the digestive system a break and would effectively "reset" the body. A pattern I picked up on is headaches preluding a severe episode, and even now that I'm older tends to stay consistent. As I got older hospital and vomiting episodes have gotten less frequent, although severe nausea still pops up every so often and will leave me stuck in bed until it lets up. Aside from anti-nausea medicine, sleep is the most consistently helpful to snap out of episodes. Although it can be hard to sleep while in pain and nauseous, these episodes are extremely strenuous on the body and often I'll end up tiring myself out before I have to go to the hospital now. It's an extremely difficult condition to manage, being a chronic condition with no cause found yet and no treatment other than medicines to lessen symptoms. I hope that despite the struggles everyone with CVS is able to live happy, fulfilling lives. ❤

[lifeoflw]

I’ve had CVS for 30 years in a episode right now.. hate it so much like it won’t go away!! I just want it to I’m 37 now almost 38 and still hasn’t stopped!!!! Thinking about anyone suffering right now as I am.. season change gets me also started my period and my depression isn’t controlled so I’m just at a extreme low right now..

[AllunaWhispers]

I've suffered with this my entire life and at 30 I finally got my diagnosis. This is the worst pain in the world. Things that have worked for me....Laying under the hot shower, splinting, migraine odt meds, and Zoloft. They always make me up in the morning.

[odinseye]

It’s been helpful seeing this is affecting others and is a real problem. I’ve wasted thousands on doctors just to shrug with no answers

[miriamlee]

Wow. I think this is what I had as a child. Approximately 4/5 times a year I had an episode. An episode looked very similar and I would vomit for 5 days and then take 2 days to rehydrate etc. I grew out of it thankfully!

[carolynep]

I'll be turning 37 in January and have never heard of this until today. Never ever did any of my doctors once told me that there's a name for this!! OMG This is insane! I'm still having neck and back pain from this Sunday's episode, even after a visit at the chiropractor.

[brookespence]

I think I may have found a name to why my body freaks out over any change in my life. Night before a surgery I had a very severe episode. Very informative video-well done.

[WoolRevival]

Thank you! Great video for a challenging issue.

[herrerajoey]

In the hospital now with this hopefully getting out today.
2nd time for me in 2 years hospital both times, absolutely brutal, I literally spent 6 days wishing I would just pass out. Every minute feels like an hour, no source of sight or sound does anything but increase the nausea so nothing to pass the time other than misery.
Hot showers are a temporary fix for me but my hot water heater only holds about 45 minutes worth and I was wanting hours. The hospital shower doesn't get very hot and the heads are worthless so that was no help.
Dilaudid was the best med for comfort and sleep, then lorazepam and zofran. I'm so sorry if you are also dealing with this, it is unbearable.

[oleschmeed]

I'm 28, and still have this. My most recent episode lasted 16 days, 16 days of constant vomiting. Day 13 I had to go to ER to get an IV bag because I was so dehydrated. The doc told me, I looked like an old person who was about to die. Unfortunately I passed it to my oldest daughter, and now with the covid Era, she gets throws up at school and won't let her come back for 24hrs, sometimes 48hrs. My father had severe migraines, which made me 97% genetically predisposed to acquire CVS. Average person pukes 3 times a year. My daughter and I puke 3 times a week, atleast. Sometimes more.

[AyyRalphy]

May also be a gallbladder issue! For 20 years, was told my gallbladder was ‘normal’ open surgery found sludge and hida revealed 0% function. Hida can tell you so much. No longer nauseous or vomiting/retching at the exact same times. Please get checked!