Tackling the Unseen Challenges of Being A Dementia Care Partner | McGill University

Listen to the BEYOND THE DIAGNOSIS podcast on Spotify:

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Hello Psych2Goers, welcome to Beyond the Diagnosis: a new podcast that provides the space for people with lived experiences as a patient or caregiver to share their stories. Hosted by Monica Taing, a Medical Student in Canada.

This episode centres around a highly impactful neurological disease: Dementia. We feature a conversation with Ms. Claire Webster, a Certified Dementia Care Consultant and the founder and ambassador of the Dementia Education programme at McGill University. Ms. Webster is a former care partner for over a decade to her mother, who struggled with Alzheimer's Disease. In this episode, Ms. Webster joins our conversation to discuss some of the unseen challenges and propose some resources to support dementia care partners.

Ms. Claire Webster's links:

Beyond the Diagnosis is hosted by Monica Taing, an advocate for youth engagement and healthcare access from Montreal, Canada. She previously studied neuroscience at the University of Oxford, and is now studying medicine at McGill University.

[progress_over_perfection]

My mom got diagnosed with dementia when I was a teen. Died a few years later. My dad also got affected some 10 yrs later. He got put in a nursing home but I quit my job and took him home and took care of him 24/7 for years before he passed at home as he wished. It was the hardest thing i’ve ever been through doing it all alone being the only child and family. For example he was in a wheelchair and i had to change his postion in bed every 3 hrs around the clock. Lost friends and relatives that didnt support my decision. and i was broken many years afterwards. That being said, he was my best friend and i would do it all over again though….

[vanessaware]

Thank you great chat. I work as a respite carer here in Australia. We consider the family just as important as the person receiving the care; we serve both. Hopefully more people will become aware of these valuable services and be able to access them more readily in the future.

[rhythmrecall]

This was wonderful, looking forward to more in this series. Monica, you are such an amazing moderator.

[commerce-usa]

If the cognitive part of the brain is diminishing, the autonomic part of the brain is also diminishing. That means eventually life sustaining things just stop working. It is very emotionally difficult to go through with loved ones. Thank you for having this guest on your channel today. Sorry to learn of the expectations on GPs in Canada. In the US, we have far more time for in office visits and were fortunate enough to have had experience with a GP who specialized in geriatric medicine. Some excellent insights from the guest.

[juni]

Thanks for providing us more information.

[Zuristudiesstuff]

I hope u guys post more videos like these, thank you for this insight

[Cnderfire]

Didn’t know shuffling was a part of dementia. My mom walks on these mini shuffles. I was like why are you walking in such teeny steps? Makes sense now

[Auramaki_]

The timing of this video reaching my feed is crazy because i was hanging out with my mom earlier and she was showing more signs of memory loss. Im terrified and scared. I dont want my mom to slowly forget everything. Im not going to be strong enough to endure this. Its gonna break me. I love her sm... 😢

[BenderNFlexo]

Thank you so do much for covering this topic, not many people would mention this mental condition. This video is especially helpful to me because my grandmother has dementia, thank you and keep up with the videos they are great 👍

[aminahmed]

What a fantastic video have a wonderful happy holiday season also a fantastic happy new year Monica and ms Webster ❤😊

[skzzr]

Hello psych2go, I am so sorry about not paying acknowledgement to the topic at hand, but I wanted to see if you could make a video where you could give tips on how to keep your relationship long term? If not that is ok, thank you for your time.

[monkey.dluffy]

I will be so honest.
I have been watching your videos for so long . But never seen any difference in myself
Can this be explained?

[DiamondGamingLover]

I hope you had a good Christmas or holiday

[ShadowMoon]

Yeah my abusive father. I put him in a nursing home.

[scarlett_torresz]

You may remember me for talking about how I feel like the world is a dream in a bathroom here’s a update:

Update:

It’s happening more now? It’s 1:46 AM it’s midnight right now and I’m on my bed listening to a playlist when I switch it to when it feels like a dream because I feel like I’m in a dream, like a really long dream. I don’t know how this happens, any guesses? (P.S happens often? In a month or a week? Idk)

[lumiereforbes]

Great video and very insightful, I think we all should know that God is good and sometimes he pushes you to places and opportunities you never knew you needed. I just got to realize that trading comes with a lot of benefits And I have just bought my first house through it. As a beginner I was scared of loosing my savings but l'm glad I took the bold step that is now favoring me.

[teegutta]

HEY GOOD MORNING MY FRIENDS AND FAMILY I JUST WANTED TO STOP BY TO SEE HOW EVERYONE IS DOING THIS MORNING, HOW CAN I TELL IF SOMEONE HAVE DEMENTIA, SLEEP WELL MY FRIENDS AND FAMILY MARY XMAS AND HAPPY NEW YEARS. TEE 🙏💯🙏💙💪

[Mr.Hossein.Mosavi]

I like your voice because it's calm and beautiful
But You look so pretty and beautiful

[ZVVRhoursnblack]

day 1 of asking why I shouldn’t microwave a fork

[sambowz]

Good content thank you.
I did however really dislike the way you abruptly cut from your intro to your subject with the change in your physical appearance . This would be upsetting to many dementia patients.
My brother and I cared for both our parents with dementia for 10 years. Hardest thing I have ever done.