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Parent Toolkit - What is an IEP or 504 plan?
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0:00:54
Parent Toolkit - What was the first year like?
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Parent Toolkit - What is an IEP or 504 plan?
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Parent Toolkit - What is the best way to keep from being overwhelmed?
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Parent Toolkit - What was school like once your child was diagnosed?
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Parent Toolkit - What is it like raising someone with Marfan when you don't have it?
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Parent Toolkit - How did you work with your childs school?
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Parent Toolkit - How is raising a child different from when you grew up?
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Parent Toolkit - How do you discuss limitations with your children?
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Parent Toolkit - How have you kept positive?
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Parent Toolkit - What advice would you give to a newly diagnosed family?
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Parent Toolkit - How do you balance being a patient and being a mom?
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Parent Toolkit - What role does a parent play with their child's doctor?
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Parent Toolkit - What was it like having your daughters go through surgery?
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Parent Toolkit - How did you introduce your child to Marfan?
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Parent Toolkit - How did you navigate medical insurance?
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Parent Toolkit - What resources are available to you as a mother?
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Parent Toolkit - How did the diagnosis affect their relationship with their friends?
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Parent Toolkit - How did your child take the news of the diagnosis?
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Parent Toolkit - Where do you look for support?
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