My Parkinson's Diagnosis Story

A 3 part recounting of the events leading up to, and including, my Parkinson's Diagnosis.

I've included some helpful links in the video description.

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[tomhaywood]

I understand. I was diagnosed with Parkinson's Disease in 2004, I was 45yrs old. Currently, I am taking Sinemet 50/200. Also, I try to exercise as much as my body allows me. I have tremors and cognitive issues. Having this disease for 20yrs I seem to be doing ok! You are not alone if you feel like reaching out please, do not hesitate.

[pamelastaton]

I too am waiting to see the neurologist, my appointment is still 2 months out…thanks for sharing your symptoms…

[rafaberr.rodriguez]

Take care and keep your spirits up. I also have PD and went through pretty much the same symptoms.

[hawaiigirl]

Wow, David we had very similar experiences. I am 56yod, diagnosed May 27, 2018. One day after my bd. I too have more movement disorder than tremors and it’s mainly on my left side. I am declining quickly even with meds. My mom had PD and most of her sisters had neurological problems. I look forward to more of your videos.

[jeanninehill]

Thank you so much for making this video. I am currently awaiting an MRI and an initial exam by a neurologist to see if I, too, have Parkinson's disease. The list you gave of your early symptoms and the timeline with which they appeared is incredibly similar to my own, right down to having our left sides as the weaker ones. I've been trying to explain to my husband what my symptoms are and how they affect me, as some are more apparent than others, and I plan to share your video with him as verification of my concerns. Again, thank you for sharing your story with us, and may the Lord bless you and keep you each day.

[JeremyMcdonald]

Thanks, David! I was diagnosed 8 1/2 years ago. I can relate to many parts of your story.

[abelbalbo]

Just catching up on some of your old videos

[garypillans]

Hi David, there's so much happening when first diagnosed I had no idea of what was happening. I thought that was just getting shakes. The ups and downs very hard to deal with. It is helpful to hear from others going to be experiences. Thank you I'll forward to hear more from you.

[sllyH]

Your videos are so helpful to me, thank you

[Mru]

Thank you David for honestly describing your experience. It helps people a lot when they share their experiences.
I was diagnosed one year ago. Over many years I was exposed to chemicals - paints, thinners, wood stains, plasters, and other construction materials. My symptoms started to appear after I had heart bypass surgery five years ago and especially three years later when I was put on blood thinners, ticagrelor and plavex. It seems the blood thinners were the main trigger.

[swisscheese]

Hello thanx fir sharing, can I ask how you felt lifting things? What did you mean by spring winding syndrome? Thanx 🙏❤️

[toryberch]

Yep, our diagnosis stories are very similar. My Neuro was cautious as I didn't fit the normal movement criteria. No tremors or shaking.
Just stiffness and PAIN! Pain in the legs from knees to hips.
I thought I had Polymyalgia Neuropathy. As I also had a lot of shoulder pain. So I worked with my rheumatologist for several years as well as my Dr. Nothing! No answers or help for years. They tried but it didn't dawn on anyone for me to see a neurologist. How I got to be with one was being tested for small fiber neuropathy. Which I tested positive for. It is a lot of hoops and time to figure this out for sure

[nanelgonowon]

Me too i was diagnosed with Parkinson disease. Taking levodopa Carbidopa 4X. I feel better my meds is like my gasoline in order to do my everyday routine need to take my meds.

[PeterKavanagh-kc]

Hi david my p d started left side im left handed could not hold pen or scanner phone dock said was tenis elbo on 8 carbodopa c r at night wit mirtazapine 12 vears with p d not u keep up good work

[hawaiigirl]

What kind of exercises helps you with strengthening? I am rigid. I get PD exercises & stretching from YouTube. Due to COVID I prefer to do it at home. I tried zooming with a PT and that was difficult for both of us. Do you swim?

[KMx]

Did your difficulty with your hand come and go in the beginning? I'm having parkinsonism symptoms (I think) but they come and go...like with my left hand (it will be slow and stiff as if my muscles are made of jerkey) and sometimes I find myself dragging my left foot. It's worse with lack of sleep or emotional stress or intense deadlines (i went to the emergency room once because my left arm was shaking so much but they said it was stress....my poor, stressed left arm...needs to take a lesson from my right arm, apparently) Then sometimes, everything is normal. My vision comes and goes also. I thought it was just age (I'm 47) but then my vision would be super clear one random day. I've traced my symptoms back to starting after a bad respiratory virus at age 40 coupled with subsequent grief/trauma. I am struggling with gut issues now, which were never an issue for me before. It's been a slow, insidious onset. I've seen countless specialists but so far, I'm the only one who is concerned something is wrong.

[WECOOK]

I was diagnosed with Parkinson’s disease May of 2021. I noticed some symptoms few years before, and tremor about six months prior…. I had know idea what was going i on. Looking back I feel stupid for not knowing.