This is Jamie’s story of living with #ankylosingspondylitis #ankylosing #spondylitis #arthritis

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Yoga for AS

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Good for Jamie, that is great. I had a late diagnosis at 42 and felt pain since 16. My neck has fused, and no exercise nor stretching will give me the same flexibility as Jamie has achieved. However, I exercise 5 days a week and it helps me stay as mobile and flexible as possible within realistic expectations. Every case is different, if yours is mild with exercise it can be manageable. For many of us, medication, exercise and mental fortitude is required to only manage the pain. God bless you all.

SH-nvcm

Do everything you can do to keep your upper spine straight! I was misdiagnosed for nearly 30 years. By the time they diagnosed me, my upper back was curved forward and everything was fused. I can’t even look straight ahead when I walk. The muscle pain is excruciating because your body is always trying to put your head back up on top of your shoulders. When your head bends forward it also exerts about 10 times the weight of your head. My trapezius muscles stay in a constant spasm. The only way to get any relief is to get a massage and it has to be long enough. They can break those muscles free, but it only lasts a few days before they spasm back up. During those few days, your muscles are so sore. You can’t hardly touch your skin. It’s like working out way too hardand being so sore, you can barely walk. It hurts to put a shirt on because the fabric is laying on your skin. Except it feels good away too because you have relief from those muscle spasms.

MimiDidi

Sir... thank you so much, you gave me hope, the pain is terrible... oh god, i must keep exercising and flexing... thanks mate... greetings from Brazil...

marcosviniciuscastro

Hi, from Louisiana. I'm 59 & diagnosed with AS when I was 42. On disability now. Your Tendons turn to calcium & fuse to the bones. It effects my movements. It also effect your ankles (u may get ankle support wrap. It'll keep them from shredding from the bone like mine did). It's tough somedays, but others are easier! Your immune system start taking a toll, take lots of Vitamins!! Tomatoes the seeds mainly cause severe inflammation!

sheilashipman

Keep up the work . Owning ur health condition.

xena

Yoga helps lot in AS... Also non starch diet..

sameersurve

please write a disclaimer if u take biologics coz your message is misleading otherwise

xasm

Thank you so much for this❤ Today we finally got results for my so. He Is 14, plays basketball, but last year He had troubles And today He was diagnosed with AS. I had a breakdown, cause all, what i read on the internet, was aweful And sounded hopeless. This brought mě back into my positivity🙏♥️ Beautiful journey!!!!

zuzanapaulickova