Unveiling Ocrevus: My Journey With This MS Treatment

Upon popular request, I share with you my experience with MS disease modifying treatment Ocrevus. I have mixed feelings about It, so listen to me talk about them here!

To learn more about Multiple Sclerosis. Stay connected with "Life of Seb" Do LIKE, COMMENT, and SHARE. Don't forget to hit the SUBSCRIBE button and the BELL 🔔 so that you never miss any updates. Thanks for watching :)

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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" YouTube channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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[lilianadoval]

It's true that you also cannot know what your life would be like if you had not undergone this treatment so I agree with your position on focusing on the positive things while science may perhaps surprise the world with new discoveries in the near future. Let's bet on the glass half full and not on the one half empty.
Seb, you are a like a lighthouse that remains lit, guiding the hope of so many.
A huge thank you that goes beyond its meaning.
Peace.

[smmcb]

Dear Seb, I’ve been on Ocrevus for two years now and like you have found it trouble free. I even caught Covid once and got over it reasonably quickly just last year. However, I do feel my MS symptoms are slowly increasing. I do not have tremors, but my walking and balance is slowly getting worse. Also, I have a strange symptom of itchiness that gets worse in hot weather or when I am sitting quietly. Brain fog is a new symptom that I have had just this year and my thinking processes are just slower than they used to be. Perhaps due to my age (near 60) I am on a faster trajectory to progressive MS. I don’t know. But I keep positive, keep active, keep exercising, keep doing all I can to just be me. Thanks Lord for my loving family all around me. God bless you Seb, with love Sharon from Sydney.

[rutgers]

thanks for sharing your experience. it’s great to hear from someone whose also on the same drug.

[dM_gH]

Hi. New here and I'm very glad that I found your channel. I am starting yoga again because of you, now as an MS patient. Thanks for the encouragement!

This is my first time to comment, I believe; I thought I would share my experience with Ocrevus. My MRIs remained stable and I enjoyed the long intervals of six months between infusions. However, I experienced a worsening of some symptoms. The catalyst for worsening of most was probably a combination of things, but there is one in particular that was the reason for my Neurologist's decision for changing to a different medicine, and that is digestion... issues with my colon, particularly. Keep in my mind that my family and I have a long history of IBS, bouts of colitis, Crohn's, etc. BUT, according to my Neurologist, Ocrevus can contribute to a worsening of those chronic illnesses, or even cause them. And it certainly did in my case. I have been on a new infusion for six months and those issues have all but disappeared, thank God. I miss the long time intervals between the administration but I do not miss those terrible issues that I dealt with and that had me hardly functioning at times.

My suggestion to anyone reading this who might suffer from the same is to talk to your Neurologist and Gastroenterologist about Ocrevus's possible role in exacerbating your symptoms. They are the ones who would best know if Ocrevus might be affecting you in this way. My two doctors worked together to come up with a new plan and I couldn't be more grateful for both of them.

Stay strong, my fellow MSers! ❤

[ashleyartwork]

Thanks for sharing 🗝🏆 im on my 1st round and watching your videos help with the journey -- kindness sent your way for sharing 🌳 sending 🏋‍♂️ to you

[mikeecko]

Hey buddy I'm sorry to hear about you having tremors still. Have you looked into baclofen? I was having severe spasms / tremors at the beginning of my diagnosis. Baclofen is a wonder drug for me? It made the tremors and the spasms go away. Thank God for that❤

I've also been on Ocrevus almost 2 years now. I was JCV positive after taking TYSABRI for 3 years.

I really haven't noticed anything while being on Ocrevus. I'm due for a dose next month. So hopefully I start to see a change. But I haven't seen anything negative with this medicine so far. I have however noticed a little bit of a crap gap as of last month. I think my body knows that I'm running out of gas of my ocrevus.

So here we go MS warriors keep fighting. All my brothers and sisters. I hope we get a cure in our lifetime ♥️🙏🏼🙏🏼🙏🏼🫶🏼🫶🏼👍🏼💪🏼💪🏼

[rhiannongroskopf]

It is hard to tell whether my pain is a symptom or side effect, but either way I am grateful for the advancements in technology, research, and treatments, and I am enjoying becoming more aware of ways to manage my health and stress to overall limit the effects of this disease.

[girlgotstyle]

I’m not on DMT’s no pain, don’t have to think about it, no sick days, rarely do MRI’s! I feel great! I had 1 relapse in 6 years and only one new lesion in that time. Walking not so great but I’m eating healthy which it helps a little.

[lauracarlson]

Hi- Always watch your videos- and they are always wonderful, heartfelt and helpful ;-) We have similarities but also differences...for one I am a woman, 58 yrs old, EDSS of a 5 and been on Ocrevus for 4 years. My MRIs have been stable but my EDSS keeps nudging upwards. This seems pretty common with the Ocrevus crowd. No relapses and MRI holds steady but there is PIRA. I am at the right age and stable so have decided to look into Aubagio for next year. It isn't as good against attacks but I am SPMS so less likely to have them and it is better at protecting against brain volume loss. So that is what I am looking into-

Regarding how often you need an Ocrevus Infusion is every 5-6 months based on Mfg recommendations. Do not allow your CD19 counts to start to climb before having your next infusion, Dr Boster says that is too late. You can hear that at 12 1/2 minutes in this video Dr Boster states this...hundreds of good videos here that I refer to constantly


Good luck and Thanks!

[_]

Thank you for your videos❕.. I got Ocrevus too and only since then I had very bad pain in my bones every morning. Now I don’t take it anymore and I have to think about other medications. And I also research a lot about the best diet for people with MS. That’s why I want to ask you if you consume Dairy.

[byron]

I think this is the 6th video I have seen about Ocrevus. I was supposed to start Ocrevus about a month ago. Besides in my personal case there may be another disease that could be mimicking my MS symptoms, I have not seen one video about Ocrevus where a patient has said, "yeah, Ocrevus has really made a difference and improved my symptoms". I told my doctor, "Yeah, I think I need a second opinion first". Since my symptoms have not noticeably worsened in about a year to year and a half, I'm thinking I made the right decision in delaying my infusion indefinitely.

[andrikos]

Fucking MS..I have had this from my 17 which started in 2005..Having been through so many symptoms and treatments..For the time being I'm also in Ocrevus..I wish you the best

[janeca]

It is so difficult to choose the best medication and it is hard for the doctors as well, they put together the patients’ experience ( what they bring to their neurologist visit) and their own medical experience, but is not easy, it is a mutual and cooperative work. Hope you are well ❤️

[WilliamWallace-sccx]

Starting Ocrevus in 2 days after Copaxone and Tysabri failed because of the side effects/reactions. But I'm really scared of starting Ocrevus..

[JadeMarsh-yuox]

Hi seb. I started ocrevous this year I haven't noticed a difference. I'm still as I was if not worse. I think I've gotten secondary ms now to be honest .

[fatimamuhammed]

Thank you so much Seb 💚💙 also let me how is it along side with the whale’s protocol goin on any review on the dr terry wahls diet ?!? Plz make a video on that as well. Lot of love 💕 Dubai 🇦🇪

[michaelstevenson]

Am on tecfidera now for over 2 years due to see my nauraligst in January. Had another MRI 2 week ago just feel my condition getting worse roll on January.

[xbendiistraw]

What is the longest you have gone without any medication?

[soaad]

I am in France now and I will start to take Ocrevus next month 😊

[JadeMarsh-yuox]

Hi Seb. I must say I'm one of those where Ocrevous isn't working for me if anything I'm getting a lot worse I cant walk far at all so have a mobility scooter at 33 years old. I catch everything now infection after infection cold ect. Since having the infections they have rapidly made MS worse. So MS has now effected the right side of my body. Before the infections my left side of body was effected.
So things are not good. I've spoken to my neurology nurse and she has also contacted the neurologist which I did and have an appointment to see him and hes organising an urgent MRI scan and hopefully will put me on a different medication. I have no life at all now. Keeping going is getting harder and harder. Kind regards Jade.