When Diabetes Tech FAILS You #t1d

preview_player
Показать описание

Рекомендации по теме
Комментарии
Автор

Exact same issues lol. I will say this though - I've had Type 1 for 29 years and remember when there was no tech whatsoever. These days the technology is better. While there's a lot we have to think about there's also a lot we have to be thankful for.

Bbawla
Автор

I rarely go out without the supplies to handle most diabetic emergencies. Set change, alcohol swabs, insulin, syringes, glucometer, dextrose, glucagon, powerbank. Worst case scenario, I also have a list of medications, photocopies of insurance cards….
I have been caught short in the past and learned my lesson!

lakegirl
Автор

You're doing great - keep at it! I've had T1D for 43 years now, and have been using similar tech to you for the past 8 years. Whenever I'm anything more than 30 minutes from my house I bring a humalog pen and finger stick testing with me. Also a battery if there's any risk there.

stonesculptor
Автор

I got out of surgery and it turns out my dexcom failed while I was recovering from anesthesia. Turns out the dexcom had stopped working as soon a I got in to surgery because they have a signal jammer in the surgical room. The anesthesiologist never measure my blood sugar during the whole 6 hr surgery. When I got out I felt horrible so I asked the recovery nurse to help me with my sensor. The urgency of my request increase as I kept feeling worse. She didn’t want to help and was annoyed at me, so she took away my oxygen. That led to a full blown panic attack. I do not recommend going into surgery without speaking with the anesthesiologist first so you know what they are doing. If you cannot see the anesthesiologist before, do not go into surgery.

jilpok
Автор

I had the most insane chain of bad luck with medtronic infusion sets. Three times in a row i got my caniula bent right after putting the infusion sets on, one day after another. Keep in mind that each day I had to be late to work, just to realize that the new infusion wasn't working either way.

gibbonswd
Автор

Justin, our fav Diabetech, if you come across OR staff who would be willing to discuss T1D management in the OR and PAR, please ask them about it.
I see another comment in this section about the challenges.
My physician has suggested a beneficial elective procedure. It’s a no-thank-you & told him NPO is difficult for a T1D as well as having to give up pump and CGM.
Surely any such discussion would be of interest. Thank you for a great channel.

lakegirl
Автор

Was in the middle of nowhere in Labrador checking on our cabin, hopped out of the vehicle and tandem pump fell off my waistband and got slammed in the closing door. 350km from home. Called tandem to ship me a new one…they guaranteed it the next day but it took 4 days. Had to do MDI for the first time in 25 years. Long acting insulin failure over night was my main reason for switching to a pump. It was pretty awful. Also had 4 Medtronic 670G pumps crack in one year while safely housed in the Medtronic issued pump case.

RosAylward
Автор

I just started on the Omnipod 5 system, put in my first pod everything was fine because I was with the trainer, three days later I did a pod change a communication error, called Omnipod support, they walked me through doing a second pod change that one had the same issue. They said I had a faulty controller and here I am back on my tandem slim two waiting for a replacement Omnipod controller! #SometimesTechnologySucks

lthomas
Автор

I had a Medtronic 770 G closed system, I would go through sensors sometimes 3 times a week. I was on the phone with Medtronic so may times I think some of the call centers knew me by name. 1 time I had a sensor tell my pump my blood sugar was 44 I did a finger stick and my blood sugar was 228. I was in shock, and almost literally. Anyway I was upgraded to the 780G and the guardian 4 sensor and this system is 10 thousand times better. When their new sensors come out I will be much happier because the sensor change is much easier. Stay on top of it you will feel better in the long run. I am a type one, I am 66 years old and have been dealing with diabetes for 45 years. The technology will help you live longer. Stay healthy

tmcclafferty
Автор

I got approved for a dexcom G7 2 weeks ago and while it's generally smooth sailing it loves to stop getting readings while I'm about to crash or spike 😭 I don't drop or spike too quickly (only really see the slightly increase/decrease arrows - granted I'm not on insulin) but i have hypoglycemic unawareness so I don't realize anything is wrong until I'm at like 55 mg/dl .

internetcowboy
Автор

Something I like is charging cases for my phone, whenever it is running low, I can just hit the charge button. I have two charging cases for my iPhone SE2 ($25/case), I swap out one for the other as needed, one is always fully charged, two-to-three charges per fully charged case.

Another tip is taking a photo of your sensor and transmitter code and saving it to your favorites on the phone for easy access (deleting the old ones). Also, it can be nice to have the sensor code if you need to reuse a G6 sensor in a pinch.

lestertheinvestor
Автор

G7 readings were like 50 points off higher than actual. That really messed with head didn’t sleep Friday into Saturday kept verifying BG finally changed G7 at midnight readings still off woke up to 50bg. Worse thing that can can happen is CGM going down. Omnipod shot and change done. CGm for me crucial.

dianarodriguez
Автор

Tried the dexcom g7 and omnipod 5 for 20 days, decided I prefer manual finger sticks and manual pen injections for comfortable nights sleep and better control over insulin

Jameshoover
Автор

I have been strugling with with the over patch of dexcom G7, they felt off. Do you recomed any good patch or adhesive 🤔

sandraacevedo
Автор

I have had the G7 app drop 3 times and had to re. Enter. It's a hassle. I now save the sensor number.

SandraSlater-dr
Автор

Half the battle is also being prepared for when things go wrong. I usually have 1 to 2 pump failures a month and usually will have my dexcom patches fall off or ripped out 1 a month. As a dude with type1D you also need to carry around a man purse to house all of your supplies

chrisdoukas
Автор

Didn’t have so much as tech failures more than I had a string of Dexcom g7s I had to remove bc they were hurting my arm. Idk if it’s the just a bad placement or something going on with the sensor itself but I’ve had a rough first go with the g7

atticuscorbitt
Автор

I’ve had too do this it’s crazy! They need to work on the app.

juliabrock
Автор

I'm struggling with mine. I Libre 3 sensor. I it's always.. No plausible values, no signal, app crashed. I don't understand how this could get approval as a medicine. Yes, the customer service is good, does not help if the product is faulty.

JochenJätz
Автор

Wow I can so relate. Took me hrs to get my computer and pump to work together to update my pump. Then sensor failed and had to start over. Anxiety from heck. I do pack a supply bag when I leave home. ❤

sharonfiscus