Long Term NEC Outcomes Webinar Recording

Necrotizing enterocolitis (NEC) is a devastating intestinal disease that primarily affects babies born prematurely or with a medical condition. NEC is often a life-altering diagnosis and infants who survive the disease often have life-long complications. Unfortunately, the field's understanding, research, and resources are inadequate for NEC survivors and their families. Much more is needed to understand how NEC affects children, families, and young adult NEC survivors, years after their original NEC diagnosis. As the NEC Society works to build a world without this devastating disease, we are committed to advancing the needs of NEC survivors and their families.

[kelviannaepperson]

I have cerebral palsy from being a preemie and lack of oxygen. My ability to suck was delayed so I couldn't be breastfed. My mom sent me a post that was talking about this because I guess she may have been worried that I have had this. I research all of my conditions because I have chronic pain and I want to understand what's going on with my body. The conditions that I have don't have a cure little to no treatment just smiling through the pain