Destigmatizing Seizures: Why Aura Symptoms Are No Joke and What It’s Like to Experience Them

Do, seizures suck, but so do aura symptoms. I recorded this video to help ,y friends and family understand my experience with seizures and pre-seizure symptoms as I was recently diagnosed with epilepsy (one week ago).

Please see this video and this channel as a safe space to share your own resources and experiences.

[erniegriff]

Accidentally stumbled in to your channel. Saw you had a couple other posts. Small sample size, but You're pretty cool very down to Earth. We are all different. God Bless you Always.

[tarynnmurray]

I have auras. Annoyingly usually on their own (being a seizure in itself). I get blurry vision, a feeling that something bad is going to happen (not the seizure) and feeling nauseous. I can still speak and hear but usually dont talk because im focusing. Ive gotten good at hand signals to communicate how i feel.
"Are you ok?" 👎
"Will you be alright" 👍🤞
"Can i get you anything?" ☝️ (communicating that im not going to speak and give me a minute)
Then im left with a migraine for that day. Auras sneak in when i am stressed or tired. They can cluster together into a long period hence why some people have wrongly labelled it as attention seeking/being dramatic

An aura is a seizure! Fighting your own brain is exhausting! Your mind goes worst case and you panic!

We need more epilepsy awareness.

[Luke-pdxj]

I can talk during mine but what I say sounds like I’m crazy, I’ll be like “ I’m not okay” and I’ll repeat that so that those around me get the message. I just think to an outsider that it would look like a panic attack. Simple Partial Seizures are very difficult to explain.