Moving the Needle: Rare Disease Clinical Trials Ecosystem for Patients of Color

The Rare Disease Diversity Coalition (RDDC) was founded to address the extraordinary challenges faced by rare disease patients of color. The Coalition brings together rare disease experts, health and diversity advocates, and industry leaders to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on communities of color. To assist in achieving this most important goal, the RDDC has developed a seminar series focused on exploring the role that clinical trial researchers, principal investigators, and healthcare professionals (HCPs) can play in effectively addressing disparities in the rare disease space. This virtual conversation, “Moving the Needle: Rare Disease Clinical Trials Ecosystem for Patients of Color”, will feature a discussion among diverse subject matter experts and professionals about the importance of a shared identity among patients and providers to improve diversity in research and clinical trials.