POTS CARE Q & A // Dysautonomia, IIH, EDS, NORMAL Scans + Specialist Hopping (yikes) & more!

When I was properly diagnosed and you all saw my rapid improvement, I got so many questions flung my way for Dr. Driscoll. Too many for me to respond on my own! I'm so thankful she was willing to hop on this call to answer these questions for you. She's a wealth of information and I can't wait to have you meet her virtually through this video call! This is the first half; part 2 will be next week. Make sure you're subscribed! #potscare #potscarepatient

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You all watched me publicly struggle to figure out what was behind my "migraines" ... well! This is the doctor who CHANGED MY LIFE by teaching me the underlying connection between my POTS, high cranial pressure (IIH), inflammation, immune cells, hypermobility (connective tissue), the vagus nerve (and other gastrointestinal things), and more. When you know the research-backed science behind your symptoms, you can gain so much more control over your life.

After being misdiagnosed with chronic migraine for 5 years, I've now been diagnosed with pseudotumor cerebri / idiopathic intracranial hypertension (IIH). I have been pursuing treatment for IIH through POTS care, and the results have been very encouraging so far.

This is part of an ongoing series of videos about my treatment through Pots Care Clinic (the treatment at POTS care has been life-changing!). I hope this series of videos will help others to recognize their POTS and pseudotumor cerebri symptoms (IIH symptoms) that occur early on, because undiagnosed intracranial hypertension often progresses toward worse symptoms, and throwing salt at POTS doesn't seem to improve long-term outcomes. I also hope that it might help those who are trying to decide whether POTS care is right for them!
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Previous videos!
The LATEST: My Spinal CSF Leak Evaluation (2022)

POTS/IIH VIDEOS YOU MAY LIKE:

THE BAD MISDIAGNOSIS TIMES:

ON TOPIC:

SOME MIGRAINE/HEAD STUFF:

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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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DISCLAIMER: Links included in this description might be affiliate links. If you purchase a product or service with the links that I provide I may receive a small commission. There is no additional charge to you! Thank you for supporting Momming with Migraine so I can continue to provide you with free content each week!

[MommingwithMigraine]

Dr Driscoll's Websites: potscare.com (options for care; my links/codes below) or drdianadriscoll.com (resources/ask a question) 🌟🌟🌟 Pls give the video a thumbs up to thank Dr. D for her time 😍 She's seriously such a gem. This is how she is all the time. Just so sweet, loving, empathetic... she GETS IT! She's been through POTS/IIH, so she gets it. I couldn't believe I found a doctor (and a whole team) that understood my conditions so well and was so passionate about making sure this information gets out. I'll post the second half of our Q&A next week.

As for POTS Care, POTS Care Package, or supplements, here are my affiliate links & your discounts!

○ POTSCare.com - You get $200 off your Individualized POTS treatment if you mention me when you call to book.

○ POTS Care Package - You get $50 off your Package by using my code, MOMMING


○ Supplements: 10% off by using my code, MOMMING


If you liked this video, you may like these:

[anksayiti]

I literally cried right now. I'm suffering all of your symptoms that you mentioned on your other videos. Been suffering this for 7 months now all day longgg. 😭

[Jen-zznv]

Baby A!! She's gotten so big!
What a wonderful interview. It seems like Drs who have walked through the valley of illness are the most effective in helping others.
Thank you Dr Driscoll for taking the time and huge effort to help people come out of that valley. And thanks Jen for doing the hard work to find answers for not just yourself, but for others who maybe don't have the where with all to fight for themselves.

[kristensaenz]

Excellent! Refreshing to see a doctor with her mindset or not just treating the symptoms and acknowledging there is a reason that someone is sick.

[daniboyd]

I feel this sooo much! I’m getting tested in a couple weeks for POTS. And if it is. I’ll be happy that I finally have somewhat of an answer after 16th are!!

[May-or-May-not]

I love this video. It is so important and I feel like all doctors should watch this. The "It's probably just in your head" gets significantly worse when you actually have diagnosed mental illnesses too. I am a female with bipolar disorder, ADHD and I'm overweight. Some times I feel like I could walk in with a severely bleeding compound fracture and be told "Increase the dosage of your antipsychotics and have you also tried losing weight?".
I went to my eye doctor to screen for glaucoma. He asked a lot of questions about my health and sleep and I was a bit flustered because I didn't see where he was coming from. He asked if I sleep well and I said no. And he asked what kept me from sleeping and I didn't quite answer because I didn't want to go into the fact that being neurodivergent, having bipolar and asthma combine into bad sleep. I've slept badly since I was a baby. He asked a lot of leading questions I answered negatively to and then he went "I think you might have sleep apnea". He was basing that on the fact that I was overweight and struggled with sleep. I had answered no to every other symptom of sleep apnea. I also know I don't have it because I've checked. You're my EYE doctor. Stay with the eyes, darn it.

[michl]

This was a very interesting Q and A! Dr. Driscoll seems really compassionate. I’m glad you’re doing much better, Jen. Just got my third oto-neurological diagnosis yesterday 🙄, so I’m relating well to you on this mystery journey. Keep doing what you’re doing. I look forward to Part 2. 😊🙌🏻💜

[oncearosestudios]

I'll be 43 next week.
Three years ago I was digging very deep to try and figure out what was wrong with me. Among others, I found Dr. Driscoll's videos about hEDS and hyperadrenergic POTS. I was diagnosed at age 40 with hEDS, and have symptoms of Hyperadrenergic POTS (though due to COVID delays I'm not diagnosed with that yet) Interestingly, I have consistently high inflammatory markers in bloodwork. I hadn't heard of inflammatory POTS before this video, but I will be looking into it further for sure! I didn't even equate the two at the time, but I was diagnosed with IIH in 2011 with a LP opening pressure of 28, LONG before the other diagnoses. Had the worst headache of my life after that procedure. Mine was diagnosed by a Neurologist. I never considered that the two could be connected. My teenager was also diagnosed with hEDS last fall. His story is longer than mine, as his diagnoses total a whopping 9 now, including a genetic microdeletion to which most other diagnoses can be attributed. What a relief, though, to have his hEDS diagnosis at age 16 instead of 40. It's nice to see you two connected since you've both helped me so much along my journey. There has been so much more than I could put in a youtube comment, but I could talk to you two for hours.

[prr]

I have suffered over four years. Have hade migraines since young adult. Even had three decompression nerve surgery for migraines. Had the sinus surgery by a ENT that supposed to be a migraine cure. Caught the flu four and a half years ago. Never really recovered. Two years ago doctor said I had PMR. Went on prednisone. Six months ago had to change doctors.The new doctor thinks I never had PMR. First doctor went by symptoms. Been tapering off the steroid. I feel miserable. Down to 2mg today. Will have to reach out to your doctor.

[isomerlab]

I was suffering from POTS as well I was diagnosed on TILT TABLE TEST (4year - 24/7 only while i was sleeping I was feelt fine I was extremly lightheadeed besides other symtoms panic attacks BP HR fluctations PRE-syncope but I havent never faint) but I was completely recovered few years ago :) I can only confirm that slight increase in Testosterone levels would help to relieve most of POTS symptoms eg. HR, BP, lightheadedness. Stay healthy !!

[iammellbell]

I really resonated when she said if you're a teenager with this and the doctors are telling you that it's all anxiety I had pots undiagnosed most of my teenage life and was told it was just anxiety and that I was just stressed and that I was making myself sick and I truly hated myself for it and that did an incredible amount of damage to me. Not sharing that as a sob story but just as awareness for teenage girls

[mariaeugenia]

AMAZING video. Thank you so This content is priceless.
I don't suffer from any of these diseases, but I'm hoping to become a doctor someday, so this is so interesting to me. So rich. Thank you Jen for all your work here in this platform, and thank you Dr. Driscoll!! I wanna be like you when I grow up hahahahahaha

[mandimoo]

Dr Driscoll I could listen to you for ever. You have a very soothing voice.

[danyelPitmon]

PS I am also on Medicare and Medicaid anything out of state is going to be on me and I don’t have the money because I receive Social Security disability survivorship how can I take care of this if I have it

[penneylane]

This is so relatable! Thank you for the interview. I'm one of those patients who has been stuck in the middle. For at least 20 years. I've been treated for my multitude of symptoms but never looked for the Why. Finally have been diagnosed with dysautonomia and I was so relieved to have a name. Still, I feel there's more to be found out. In my 40's and I need more time and money to invest in a deeper diagnosis. I'm a little frustrated but thankful that long covid has come to light. If that makes sense. We've been suffering for years before this.

[li-la-lomeyutar]

You got a mission. Looks like. This is a way for quality of life for you and for others. I think... From the deep pits, you are blessed.

[faithcooper]

Watching this 2 days before my movement specialist with no flags on any of my test and migraines and twitching so this is perfect timing.

[lisacook]

Living with MS Living moment by moment with health is so me. Being aware of my body is also part of my life. Last July I had a stem cell treatment to repair nerve cells. It was done by my pain doc. For insurance to cover it, they consider it a transplant. The MS has so be so progressed for this to happen. This is so non-sense Stop the damage before it happens. Docs need to please listen and dont brush us off. My advice is to keep researching for a doc, symptoms, or organization to help find the answers. I know that this con be frustrating but keep looking, If nothing else, this make you feel like your are doing something and in a feeling of control.

[allisong]

I’ve been sick for over 30 years! My daughter was told they think she has EDS hypermobility and on the waiting list for genetics. I’ve been wondering if we have IIH as well. Our symptoms vary daily. Thank goodness she is going to an optometrist Monday because she is having vision issues. I’m not sure she is getting relief with her dysautonimia symptoms by the medicine they have started her on. This is helpful information thank you both!

[kdouthwaite]

You’re amazing, so much persistence was necessary for your to finally get a diagnosis ..: I’ve been watching since you published your first video, I’m so so delighted for you !