New diagnoses and reorienting | ME CFS Fibromyalgia

I've had some shocks recently. In this video I give you an update of what's been happening and how I am coping.
#chronicfatiguesyndrome #fibromyalgia #mecfs

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Disclaimer: Yoga includes physical movements as well as an opportunity for relaxation, stress re-education and relief of muscular tension. As is the case with any physical activity, the risk of injury, even serious or disabling, is always present and cannot be entirely eliminated. If you experience any pain or discomfort, listen to your body, discontinue the activity, and ask for support from your medical team. If you engage in this exercise or exercise program, you agree that you do so at your own risk, are voluntarily participating in these activities, assume all risk of injury to yourself, and agree to release and discharge

[Michelelynnreads]

Last year, I developed mecfs after having fibromyalgia for 12yrs. This year my doctor found two MTHFR gene variants in my bloodwork. I'm trying to make sense of everything and decide if anything needs to change in my treatment. The severe chronic fatigue is nothing I've ever felt before, even with fibro. I look forward to following your course of action. I hate that you were never told. There are so many issues with the medical community, no matter what country you're in. I'm thankful to finally be under the care of as close to a functional medicine practioner under an HMO in the US. I don't have extra money for things/specialist not covered by insurance. In the US, things that are not "approved" by the FDA are not typically covered, which takes into account most of the holistic and functional medicine treatments that have promising results.

[divacassandra]

Holyshit, I am so sorry You have had such a shock to the system. You didn't need the extra stress. Virtual hugs from FL.

[andreaandersson]

Have you been checked for sleep apnea, or other sleep breathin disorders?

I have ME/cfs (severe), fibro, EDS - a very nice cocktail - but also severe sleep apnea. Which the dr’s didn’t check me for, allthough me really begging for it and my whole symptom bouffet screamed Sleep Apnea, my first five yrs as sick (now seven yrs in). My pap-machine has helped immensely, not with my daytime energy but my sleep, albiet yet not good, is of another world. So many of my crazy sleep desturbances - lucid dreaming, hallucinations, heart palpitations; a true cirkus - vanished in three days.

Thanks for sharing your story. I’m going to try the Recovery Factor, see if it helps me in any way.

❤

[Truerealism]

Just found out diagnosed neurosthenia 1998

[rubybeard]

Diet was a game changer for me started with AIP I’m small but mighty now Paleo is my lifestyle. I did find out that seeds, nuts dairy, and eggs ate food triggers. I spent 5 years in bed and knew There was only two choices I’m winning 🏅 My life has been very challenging the medical system gave me diagnosis of poly myalgia poly arthritis all kinds of crap I too finally got into my medical records to find out there was notes in the charting about my medical history that I was unaware of knowledge is truly power. My healing has been going well, and I live a active life now, almost no symptoms. I will give you some advice not to scare you but Educate yourself and do your best to prevent it I am a small person and I developed osteoporosis due to lack of weight-bearing exercise and solitary lifestyle. This is a silent killer lack of hormone regulation malabsorption, parathyroid we reached our maximum bone potential at ago 30 then it starts to decrease from there. I know you’re very stressed over your health and put your all into your family and keeping your health in control as much as possible. I have been watch your videos for years, and find you to be a very compassionate kind human being. I’m here if you want to talk ❤

[jennifer]

I’m wondering if the LDN quit working for you as far as sleep since you take a sleep med. I just started LDN and I haven’t slept this good in years. I hope it continues. I have fibromyalgia and CFS and believe the CFS is a symptom of fibromyalgia due to chronic pain. I know they consider them separate diagnosis but I’m thinking they go hand in hand.

[silvermoonuk]

Hi. I have fibromyalgia dx but I think I got cfs as well. Could you do a video about ur thoughts on opiates. I'm struggling to reduce my opiates and go natural

[richardgerome]

What are you taking for sleep again? I never heard of it (I don’t think 🤔?) This is my major problem. Right now I am taking CBD Gummies 1500mg CBD 300mg CBN and 60mg THC but these numbers count for 30 Gummies not 1…

[Truerealism]

But now no i have heds asperger's add had to do it myself to find out reason why