A Patient Describes Her ME/CFS Symptoms - Davenport, Stevens, & VanNess | MedBridge

Read related article: "Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: What’s in a Name?"

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[cindyski]

If I go grocery shopping, that’s it for the day! Exhausted like crazy.

[sparkoceanic]

I notice the cognative problems as my first symptom of over going it too, now that you mention it. Then follows heaviness of arms in my particular case. If i don't stop when that starts happening and rest up, i will crash. However, i can push past the cognative symptoms for a little while without completely crashing.

This illness is a very hard thing figure out, and i think you did a good job answering that question.

[hilarymurray]

I got these symptoms after covid. My heart rate wouldn't come down
If I do too much it effects my brain. My brain feels stuffy, I get confused, I can't remember words, and I get anxious and cry. Exercise makes it worse. My husband thinks I'm just being lazy. He doesn't think anything is wrong with me.

[brandykaymagee]

Omg! My heart rate goes up just walking for exercise. I hate ME/CFS

[gcfcos]

I’m going all through this at the moment. Trying everything with my doctor to get help.

[Annmarieize]

All them symptoms happen to me
With ME and fibromyalgia
with whole body pain, nausea and whole body paralysis just for being a little active like talking to much or out on my power wheelchair for a little
While.
Take a week or weeks to build up little.
Even if I don’t go out and stay in bed I still flare due to sounds smells to many people around me, every symptom get worse, I have to wear ear plugs.
Even if I am driven i still flare.
I cannot be stress emotional or physically

[WanderingStardust]

When you can't even keep your eyes open to watch a two minute video 🙋🏾‍♀️

[suzanneknight-omdn]

I am living it, with a broken neck C4C5 …I have lost ME ..over 20 yrs … it’s a living hell, I don’t leave my home,
Coping with anything, trauma depression, I spent a lot of time alone. where when this all happened
.I was high functioning just like Martha Stewart, I am a people pleaser my entire life …
I lay in bed, and pray .. please just pain down to3 .. and a good drink of vodka… does help ..
But I will fall, set back, reaching the left arm our to help my fall ..since May 26 ..April
Fighting infection thru my jaw, throat, sinus, gland’s swelling, fatigue.. can’t do a thing.
But my mind just kept runnng on what I need to do ..
65 Nov. Loving in Canada …I was middle class, + now poor poor .. worried about paying for
my meds.

[woodfloorsjohnny]

I have a Stomach bug right now...i feel like 💩... 😢

[MP-uoqd]

WHat is this 2 day PET thing? I am from the UK. WHat is it supposed to do? I want treatment not tests.

[tessgirl]

I’ve got twiches & burning my legs I’ve no others I got post viral fatigue could it be that

[suzannethompson]

Me too. I lifted concrete blocks like an idiot and was sweating and palpation. Two days in bed