2021 Advocacy Week Kickoff Event with Rep. Jamie Raskin

In 2020, Representative Jamie Raskin (MD-08) introduced H.R. 7057, The Understanding COVID-19 and ME/CFS Subsets Act, the first piece of legislation to authorize funding from the National Institutes of Health (NIH) for ME/CFS research and education. In this video, Rep. Raskin kicks off 2021 Advocacy Week with his remarks on the power of advocacy. He is joined by Maryland Secretary of Aging and Solve M.E. Board Member Rona Kramer, disabled registered nurse and patient expert Ashanti Daniel, BSN, RN, and Sarah Bekins Tompkins, Rare Disease Legislative Advocates (RDLA) Advisory Committee Member and EDS patient advocate.

[renitaroberson]

Excellent speeches. As nurses, we should become more knowledgeable so we can advocate. Great job Ashanti!!

[mocki]

Rep Raskin is such a good man, thank you for caring Sir!