My Klippel-Feil syndrome Vlog ~ Dec 5

Klippel-Feil syndrome makes my joints, muscles, nerves severely painful. Trying injections again, with high hopes!

[sandimasmama]

Thanks for your perspective! I learned a few new things that I need to talk to Caleb about. It also has made me think I should get myself checked out.

[kadianae]

Thank you for sharing. My son has headaches that I believe are connected to his Klippel-Feil syndrome. He's recently moved, and I'm hoping he'll be able to find a good primary care physician that is familiar with KFS and we'll be willing to coordinate his care.

[JouppiOutdoors]

Thank you for sharing! Looking forward to following your vlog, just subbed!

[TuggerAbbey]

How did you get diagnosed with hyper mobility? I have similar symptoms and fusions. Two years ago I went through a really tough pain patch! I couldn’t even ride in a car, when I hit a small bump, it was excruciating. I am feeling better, but I am terrified it will come back. I have nerve damage in my left foot, right arm and neck and cape pain. I have KFS, Scoliosis, Syringomyelia, Spina Bifida Occulta and missing a kidney.

[Lolo-xnp]

في احد يترجملي عشان عندي نفس الي عندها