Lichen Sclerosus Support Network is growing!

By donating to Lichen Sclerosus Support Network (LSSN), you are funding the development of evidence-based educational content on the diagnosis and treatment of lichen sclerosus. In 2022, LSSN earned official 501(c)(3) status as a nonprofit organization, laying the foundation for growth as we pursue our mission.

Since 2020 when the co-founders first came together, LSSN has pursued its mission to empower people with lichen sclerosus by providing evidence-based education. LSSN is also building an extensive content library to help people cope with all facets of this condition, including mental health, sexual wellness, pelvic floor health, pregnancy, bathroom issues, and more.

This chronic, progressive skin disease affects as many as 1 in 70 vulva owners. While LS is treatable and manageable, too many people suffer in silence because of a lack of information. Every person affected by lichen sclerosus deserves accurate and thorough information to make sound decisions on their health.

LSSN believes every provider who treats a patient with or possibly with lichen sclerosus should be well-informed on diagnosing, treating, and caring for that person. That is why LSSN's mission supports providing accurate and evidence-based education to patients and providers.

[lenaparnell]

I’ve been diagnosed with LS several months ago but may have had it for longer. I’ve noticed today that my vagina has gotten smaller. I know that the skin down there is fusing. I’m very concerned about my vagina fusing, the opening is 1 inch now. I have an appt with my gyno tomorrow. I hope that whatever I have to do will not be a painful fix.