Managing my Haemochromatosis

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Ashleigh tells us how she manages her haemochromatosis.
  1. HaemochromatosisAust
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Комментарии
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hello! welcome to the club, I was diagnosed over a decade ago, in my 20s as well, I know your pain.

axeouse
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What range do you hold your ferretin levels at

craigfisher
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I don't get it they told me i couldnt donate blood because of hemochromatosis.

LyricBeastOrphanage-lw
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May I ask you your levels?
Mine are 190 iron serum, 390 Ferritin, 210 Transferrin.
I am going to have the Hfe gene test soon.

ilmendo
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What was your ferritin level? I have the genetic variants and my ferritin is greater than 2000. 2000 was the max reading for the test. My iron is 208. My symptoms have been severe for about 10 years with mild symptoms before that. I'm almost 42. I figured out what i had after requesting an iron panel after 23and me DNA test showed i had the generic variants and i had all the symptoms.

Renofirefly
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what level ferritin to you try and stay below and what's your TSAT%? Ideally if tsat% is above say 33% it's good to bleed when ferritin is 50 or above but if tsat% is below 33% you can let ferritin get up to around 80. Oxidative stress is said to begin when ferritin rises above 100 and the sweet spot of ferritin is around 60-80 providing your tsat% is healthy, under 33%.

danvining
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I always felt better giving blood that was the first sign i had higher iron levels

morn