Big Data, Health Law, and Bioethics: Panel 4, Protecting Health Privacy in a World of Big Data

Speaker: Brent Mittelstadt, Oxford Internet Institute

This conference aimed to: (1) identify the various ways in which law and ethics intersect with the use of big data in health care and health research, particularly in the United States; (2) understand the way U.S. law (and potentially other legal systems) currently promotes or stands as an obstacle to these potential uses; (3) determine what might be learned from the legal and ethical treatment of uses of big data in other sectors and countries; and (4) examine potential solutions (industry best practices, common law, legislative, executive, domestic and international) for better use of big data in health care and health research in the U.S.
Panel 4, Protecting Health Privacy in a World of Big Data:
- Catherine M. Hammack, Duke University School of Medicine - Thought Leader Perspectives on Risks and Protections in Precision Medicine Research
- Brent Mittelstadt, Oxford Internet Institute - From Protecting Individuals to Groups in Biomedical Big Data
- Donna Gitter, Zichlin School of Business, Baruch College - Informed Consent and Privacy of De-Identified and Estimated Data: Lessons from Iceland and the United States in an Era of Computational Genomics
- Moderator: Effy Vayena, Health Ethics and Policy Lab, Department of Public Health, Epidemiology, Biostatistics and Prevention Institute, University of Zurich
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School 2016 annual conference focused on “Big Data, Health Law, and Bioethics.” The conference was organized in collaboration with the Berkman Center for Internet & Society at Harvard University and the Health Ethics and Policy Lab, University of Zurich.