Courtney's Addison's Disease Journey

Courtney’s Addison’s Disease Journey – Hear the inspiring story of a young woman who experienced tremendous challenges after giving birth until finally diagnosed.

[IcelanderUSer]

I too have it. It took my doctors months to figure it out. It took an adrenal crisis on the operating table. I was having a muscle biopsy. Because of all the problems and weakness I was having. Like you said it’s very rare. Very few doctors will ever see it in their careers.

[johnettamathews]

So much like my own story I have be diagnosed since 2009 I was sick for three years and got down to 79 lbs and was so close to death before diagnosis grateful for every day with my family

[cindyyearwood]

I was diagnosed in 2004 and I understand what each one goes through. I’ve had several crises and have been hospitalized. I’m so glad I ran across this because it shows we’re not alone.

[janetedens]

Even though I wouldn't wish this disease on anyone, I have more courage knowing I am not alone. I am sorry your doctor thought the same as mine did. I often wonder how many people out there who have been diagnosed with depression actually have Addison's Disease. Thank you for your words. Take care of you. I am also thankful for the NADF. They helped give me courage to talk about Addisons with my then doctor.

[weebee]

I tried anti-depressants and anti-anxiety meds for years, and had to drop out of college twice, before finally being diagnosed at 27. Now 36 and I was diagnosed with hashimoto's hypothyroidism last year too. Thank you for making this video. You're so lucky to have such a helpful support group!

[Mamaof]

I have olive skin but my skin has gotten darker over the years. Everything that you had mentioned that’s what I have been going through for the past 6 years. Since I had my baby girl 6 years ago I’ve had those symptoms and every time I see a doctor they always tell me that I am ok but I do not feel ok.

[dinomyte]

Diagnosed this past year. This is a new to me. Haven't had a crisis yet and hope not to. Been taking my meds regularly. Thanks for sharing.

[manuelsanchez]

I was born with Addisons Disease in 1970 52 years on steroids its been tough.
Great video good luck

[tamaragenar]

A docter i still dont get medication... 7 years later 2 times this diagnose.. Belgium

[THEBEANLORD]

Tanned skin is what got your dad to remember, but in some cases of addisons the hyperpigmentation does not occur. Scary thought

[vickienorris]

I turned 60 in ICU being diagnosed. I am a type 1 diabetic and didn't think I would have another crazy disease. I went to sleep and can't wake up when I go onto crisis. I get depleted of magnesium potassium sodium and my BP drops. I have had 5 says in icu since April anywhere from 1 week to 2 weeks.

[Artbot]

❤ thank you for sharing your story. I’ve been trying to figure out what is going on for years but this sounds Exactly like what I’m going through.

[truthmatters]

I am getting Immunotherapy for Stomach Cancer and started having some major fatigue and bad headaches and several other symptom's thankfully after I passed out during a routine blood draw before cancer treatment my oncologist had me tested and found out that I had addisons, I started on low dose prednisone and immediately started feeling better, I wa only misdiagnosed for a month, my heart goes out for people that suffer for years before they are correctly diagnosed,

[jadegirl]

I have been having extreme fatigue and muscle and joint pain for months now. Just has a ACTH test and that was high but am cortisol levels were normal. I'm hoping for further testing because I know something is wrong. I'm craving salt and losing my hair. I also am either not hungry or if I do eat a lot losing weight. I was on prednisone because they thought I had Crohn's disease but weaned off and that's when my problems really started. I hope I can get some answers because I'm not sure how much longer I can last being like this.

[edtomorrow]

What were your cortisol levels atvthe time you got diagnosed?

[lianagilbert]

I’ve been diagnosed with adrenal insufficiency years ago. When I started the hydrocortisone I had a massive dizzy spell so I stopped it. My calves hurt so bad after an average day at work. My joints, cartilage and muscles I wake up every day with pain. My worst problem is that I have these crashes that I call “alligator death roll” because it is just that disturbing. Had one during the day on Thursday, am still exhausted. It was followed by a bad migraine that lasted 24 hours. My siblings are diabetics. I feel like this is worse because there are no solutions.

[Mr_IBen]

My Dad was diagnosed with Addison case and it's difficult to find the medication here in Nigeria.
We need Help!!!❤

[huskylover]

I jus got out of the hospital from having an addisonian crisis. It was scary n I have had both types of adrenal insufficiency all my life. This was the first time a crisis has ever happened.

[JacobCricket]

What about pain? My wife anguished in pain daily. Muscle and joint pain, doctor won't give her anything except a neurological medication for pain that doest work

[sidisrandomlife]

i have it too and i almost died at 12 and im 13 now❤❤❤❤